ArticleEGEMS (Washington, DC)2016
Software-Enabled Distributed Network Governance: The PopMedNet Experience.
Article in EGEMS (Washington, DC), 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Common data models and data standards for tabular health data: a systematic review.BMC medical informatics and decision making · 2025Pooled it
- A cross-consortium, stakeholder-driven model for implementing a modern electronic data capture and submission system across the Alzheimer's Disease Research Centers Program.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2026Article
- Implementation report on pioneering federated data access for the German National Emergency Department Data Registry.NPJ digital medicine · 2025Article
- The US Food and Drug Administration Sentinel System: a national resource for a learning health system.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- A process to deduplicate individuals for regional chronic disease prevalence estimates using a distributed data network of electronic health records.Learning health systems · 2022Article
- An atomic approach to the design and implementation of a research data warehouse.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Expected 10-anonymity of HyperLogLog sketches for federated queries of clinical data repositories.Bioinformatics (Oxford, England) · 2021Article
- Infrastructuring an organizational node for a federated research and data network: A case study from a sociotechnical perspective.Journal of clinical and translational science · 2021Article
- PCORnet® 2020: current state, accomplishments, and future directions.Journal of clinical epidemiology · 2021Article
- Leveraging the Capabilities of the FDA's Sentinel System To Improve Kidney Care.Journal of the American Society of Nephrology : JASN · 2020Review
- Multiple imputation for analysis of incomplete data in distributed health data networks.Nature communications · 2020Article
- Distributed Regression Analysis Application in Large Distributed Data Networks: Analysis of Precision and Operational Performance.JMIR medical informatics · 2020Article
- OnTrackNY's learning healthcare system.Journal of clinical and translational science · 2020Article
- Empowering knowledge generation through international data network: the IMeCCHI-DATANETWORK.International journal of population data science · 2020Article
- Harnessing the Biologics and Biosimilars Collective Intelligence Consortium to Evaluate Patterns of Care.Journal of managed care & specialty pharmacy · 2019Article
- Cross-Network Directory Service: Infrastructure to enable collaborations across distributed research networks.Learning health systems · 2019Article
- Collaborating on Data, Science, and Infrastructure: The 20-Year Journey of the Cancer Research Network.EGEMS (Washington, DC) · 2019Review
- Comparison of privacy-protecting analytic and data-sharing methods: A simulation study.Pharmacoepidemiology and drug safety · 2018Article
- A Query Workflow Design to Perform Automatable Distributed Regression Analysis in Large Distributed Data Networks.EGEMS (Washington, DC) · 2018Article
- Development, Validation, and Dissemination of a Breast Cancer Recurrence Detection and Timing Informatics Algorithm.Journal of the National Cancer Institute · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe expanded availability of electronic health information has led to increased interest in distributed health data research networks. DISTRIBUTED RESEARCH NETWORK MODEL: The distributed research network model leaves data with and under the control of the data holder. Data holders, network coordinating centers, and researchers have distinct needs and challenges within this model. SOFTWARE ENABLED GOVERNANCE POPMEDNET: The concerns of network stakeholders are addressed in the design and governance models of the PopMedNet software platform. PopMedNet features include distributed querying, customizable workflows, and auditing and search capabilities. Its flexible role-based access control system enables the enforcement of varying governance policies. SELECTED CASE STUDIES: Four case studies describe how PopMedNet is used to enforce network governance models. ISSUES AND CHALLENGES: Trust is an essential component of a distributed research network and must be built before data partners may be willing to participate further. The complexity of the PopMedNet system must be managed as networks grow and new data, analytic methods, and querying approaches are developed.
conclusionsThe PopMedNet software platform supports a variety of network structures, governance models, and research activities through customizable features designed to meet the needs of network stakeholders.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.