ArticlePerspectives in health information managemen2016
Personal Health Records: Beneficial or Burdensome for Patients and Healthcare Providers?
Article in Perspectives in health information managemen, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers to patient, provider, and caregiver adoption and use of electronic personal health records in chronic care: a systematic review.BMC medical informatics and decision making · 2020Pooled it
- The Effect of European Health Literacy-Based e-Pulse Education and e-Pulse Instructional Materials on Health Literacy Levels in Adults Aged 45-64: A Randomized Controlled Trial.Research in nursing & health · 2025Trial
- Patients' Perspectives on Telemedicine for Type 2 Diabetes in Primary Care: Systematic Review and Thematic Synthesis.Mayo Clinic proceedings. Digital health · 2026Review
- Usage and Perceptions of Electronic Patient Records Experienced by Users and Nonusers in the Canton of Vaud, Switzerland: Mixed Methods Study.Journal of medical Internet research · 2026Article
- Self-sovereign management scheme of personal health record with personal data store and decentralized identifier.Computational and structural biotechnology journal · 2025Article
- Impact of family doctor contracted services on the health of migrants: a cross-sectional study in China.Scientific reports · 2024Article
- Patient online access to general practice medical records: A qualitative study on patients' needs and expectations.Health information management : journal of the Health Information Management Association of Australia · 2024Article
- Personal Health Record (PHR) Experience and Recommendations for a Transformation in Saudi Arabia.Journal of personalized medicine · 2023Article
- Factors Associated with Reducing Disparities in Electronic Personal Heath Records Use Among Non-Hispanic White and Hispanic Adults.Journal of racial and ethnic health disparities · 2023Article
- Patient empowerment through a user-centered design of an electronic personal health record: a qualitative study of user requirements in chronic kidney disease.BMC medical informatics and decision making · 2021Article
- How the Use of a Patient-Accessible Health Record Contributes to Patient-Centered Care: Scoping Review.Journal of medical Internet research · 2021Article
- Capturing the Impact of Patient Portals Based on the Quadruple Aim and Benefits Evaluation Frameworks: Scoping Review.Journal of medical Internet research · 2020Article
- The Use of Mobile Personal Health Records for Hemoglobin A1c Regulation in Patients With Diabetes: Retrospective Observational Study.Journal of medical Internet research · 2020Observational
- Usefulness and Usability of a Personal Health Record and Survivorship Care Plan for Colorectal Cancer Survivors: Survey Study.JMIR cancer · 2019Article
- Phelan-McDermid syndrome data network: Integrating patient reported outcomes with clinical notes and curated genetic reports.American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics · 2018Article
- Characteristics of personal health information management groups: findings from an online survey using Amazon's mTurk.Journal of the Medical Library Association : JMLA · 2017Article
- Exploration of the Personal Health Record as a Tool for Spinal Cord Injury Health Self-Management and Coordination of Care.Topics in spinal cord injury rehabilitation · 2017Article
- Implementation of EPR-Youth, a Client-Accessible and Multidisciplinary Health Record; A Mixed-Methods Process Evaluation.International journal of integrated careArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Personal health records (PHRs) have been mandated to be made available to patients to provide increased access to medical care information, encourage participation in healthcare decision making, and enable correction of errors within medical records. The purpose of this study was to analyze the usefulness of PHRs from the perspectives of patients and providers. The methodology of this qualitative study was a literature review using 34 articles. PHRs are powerful tools for patients and healthcare providers. Better healthcare results and correction of medical records have been shown to be positive outcomes of the use of PHRs. PHRs have also been shown to be difficult for patients to use and understand, and providers had concerns about correct information transferring to the portals and patients eliminating information from the record. Concerns regarding patient understanding of medical records, legal liability, and the response time required of providers were also identified. For the PHR to succeed in the US healthcare system, assurance that the information will be protected, useful, and easily accessed is necessary.
Indexed as
Identifiers
27134613PMC4832132What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.