Evidence map›Paper›PMID 27133493›Full record

ReviewRheumatic diseases clinics of North America2016

Using Patient-Reported Outcome Measures to Capture the Patient's Voice in Research and Care of Juvenile Idiopathic Arthritis.

Aimee O Hersh, Parissa K Salimian, Elissa R Weitzman

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Rheumatic diseases clinics of North America, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Review
  4. Article
  5. Observational
  6. Observational
  7. Article
  8. Article
  9. Review
  10. Review
  11. Observational
  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Aimee O HershPediatric Rheumatology, University of Utah, 81 Mario Capecchi Way, 4th Floor, Salt Lake City, UT 84113, USA. Electronic address: aimee.hersh@hsc.utah.edu.
Parissa K SalimianDivision of Developmental Medicine, Boston Children's Hospital, 300 Longwood Avenue BCH3185, Boston, MA 02115, USA.
Elissa R WeitzmanDivision of Adolescent/Young Adult Medicine, Boston Children's Hospital, 300 Longwood Avenue BCH3187, Boston, MA 02115, USA; Department of Pediatrics, Harvard Medical School, 300 Longwood Avenue BCH3187, Boston, MA 02115, USA; Computational Health Informatics Program, Boston Children's Hospital, 300 Longwood Avenue BCH3187, Boston, MA 02115, USA.

Funding

Enhancing Meaningfulness and Usefulness of Pediatric and Caregiver PROMIS Measures Across Illness GroupsU19AR069522 · NIAMS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI BENNETT, ANTONIA · 2015 to 2015
$2.9M
Active Patient Participation in a Disease Registry for Comparative EffectivenessR01LM011185 · NLM · BOSTON CHILDREN'S HOSPITAL · PI MANDL, KENNETH D., WEITZMAN, ELISSA R · 2012 to 2014
$1.3M
Adult Outcomes of Juvenile Idiopathic ArthritisK23AR066064 · NIAMS · UNIVERSITY OF UTAH · PI HERSH, AIMEE O · 2014 to 2018
$817k
NIAMS NIH HHS K23 AR066064NIAMS NIH HHS U19 AR069522NLM NIH HHS R01 LM011185
6 · The paper itself

Abstract

Patient-reported outcome (PRO) measures provide a valuable window into how patients with juvenile idiopathic arthritis and their parents perceive their functioning, quality of life, and medication side effects in the context of their disease and treatment. Momentum behind adoption of PRO measures is increasing as these patient-relevant tools capture information pertinent to taking a patient-centered approach to health care and research. This article reviews the clinical and research utility of obtaining PROs across domains applicable to the experience of juvenile idiopathic arthritis and summarizes available self-report and parent-proxy PRO measures. Current challenges and limitations of PRO usage are discussed.

Indexed as

Activities of Daily LivingBiomedical ResearchPatient Reported Outcome MeasuresQuality of LifeAntirheumatic AgentsArthralgiaArthritis, JuvenileHumansPatient-Centered CareTreatment OutcomeAntirheumatic AgentsChronic diseaseComparative effectiveness researchHealth outcomesJuvenile arthritisPatient-centered carePediatric rheumatologyQuality of lifeSelf-report

Identifiers

PMID27133493
PMCPMC4853816

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.