ArticleBMC medical ethics2016
The ethics of community-based research with people who use drugs: results of a scoping review.
Article in BMC medical ethics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
54 citing papers in PubMed.
- Perception of Resource Allocations to Address the Opioid Epidemic.Journal of addiction medicineTrial
- Working with, learning from and giving back: Principles for collaborative research with people who use drugs.Addiction (Abingdon, England) · 2026Article
- "That would be such a game changer": a qualitative study of the acceptability and feasibility of a digital harm reduction support tool among people who use drugs.Harm reduction journal · 2026Article
- Implications of COVID-19 Restrictions on the Ethics and Methods of a Multi-Site Study on Alcohol and Other Drug (AOD) Use Treatment among Men in South Africa.Journal of empirical research on human research ethics : JERHRE · 2026Article
- The community representative council of the National Drug Abuse Treatment Clinical Trials Network: Co-design and early impact.Journal of substance use and addiction treatment · 2026Article
- Defining success together: a collaborative approach for client and provider-engaged outcomes indicator development in Ontario.Research involvement and engagement · 2026Article
- Inclusive approaches to research and healthcare for nitrous oxide users: lessons from a longitudinal study.BMJ neurology open · 2026Article
- "Being treated as the expert:" A blueprint for a community advisory board approach to elevate the voice of people with living experience with substance use in academic research.Journal of clinical and translational science · 2026Article
- Predictors of Retention in a Clinical Trial of a Fentanyl Overdose Prevention Intervention: Implications for Supporting Participants' Retention in Harm Reduction Research.Substance use & misuse · 2026Article
- Co-Designing the PATH Harm Reduction Training for the Peer Workforce: A Community-Based Participatory Approach.Research square · 2025Article
- Co-creating health system innovation with people who use drugs.Harm reduction journal · 2025Article
- Increasing opportunities for community input in harm reduction program development using iterative engagement.Harm reduction journal · 2025Review
- Using photovoice to define "community" in substance use disorder research engaging service users, providers, and policymakers.SSM. Qualitative research in health · 2025Article
- Rural community-based participatory research with families of people who use drugs: key considerations from a multi-provincial research partnership.Harm reduction journal · 2025Review
- Understanding parents' experience navigating substance use treatment and the child welfare system.Journal of substance use and addiction treatment · 2025Article
- Co-Authoring and Reporting on Lived Experience Engagement in Mental Health and/or Substance Research: A Qualitative Study and Guidance Document.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Patient and public involvement in basic and clinical psychiatric research: a scoping review of reviews.BMC psychiatry · 2025Article
- Elevating lived experience in overdose prevention: a community case study of Arizona's overdose data to action community advisory board.Frontiers in public health · 2025Article
- Co-creating and implementing a novel pre-conference event to promote equity and inclusivity among academic researchers and people who use drugs.Drug and alcohol review · 2025Article
- Exploring the Methodological Benefits and Challenges of Utilising a Photovoice Methodology With Individuals in Recovery From Problem Substance Use.Qualitative health research · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundDrug user networks and community-based organizations advocate for greater, meaningful involvement of people with lived experience of drug use in research, programs and services, and policy initiatives. Community-based approaches to research provide an opportunity to engage people who use drugs in all stages of the research process. Conducting community-based participatory research (CBPR) with people who use drugs has its own ethical challenges that are not necessarily acknowledged or supported by institutional ethics review boards. We conducted a scoping review to identify ethical issues in CBPR with people who use drugs that were documented in peer-reviewed and grey literature.
methodsThe search strategy focused on three areas; community-based research, ethical issues, and drug use. Searches of five academic databases were conducted in addition to a grey literature search, hand-searching, and consultation with organizational partners and key stakeholders. Peer reviewed literature and community reports published in English between 1985 and 2013 were included, with initial screening conducted by two reviewers.
resultsThe search strategy produced a total of 874 references. Twenty-five references met the inclusion criteria and were included in our thematic analysis. Five areas were identified as important to the ethics of CBPR with people who use drugs: 1) participant compensation, 2) drug user perspectives on CBPR, 3) peer recruitment and representation in CBPR, 4) capacity building, and 5) participation and inclusion in CBPR.
conclusionsWe critically discuss implications of the emerging research in this field and provide suggestions for future research and practice.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.