ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2016
Health care experiences of long-term survivors of adolescent and young adult cancer.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
18 citing papers in PubMed.
- Transitions Within and Use of Outpatient Primary and Oncology Care in Survivors of Adolescent and Young Adult-Onset Cancers.JCO oncology practice · 2026Article
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- Long-term care, care needs and wellbeing of individuals after cancer in childhood or adolescence (VersKiK): study protocol of a large scale multi-methods non-interventional study.BMC health services research · 2022Article
- Article
- Additional medical costs of chronic conditions among adolescent and young adult cancer survivors.Journal of cancer survivorship : research and practice · 2022Article
- A Support System for Adolescent and Young Adult Patients with Cancer at a Comprehensive Cancer Center.JMA journal · 2022Review
- Influence of Socioeconomic Status on Incident Medical Conditions in Two-Year Survivors of Adolescent or Young Adult Differentiated Thyroid Cancer.Journal of adolescent and young adult oncology · 2021Article
- The support and information needs of adolescents and young adults with cancer when active treatment ends.BMC cancer · 2020Article
- Age-Related Differences in Financial Toxicity and Unmet Resource Needs Among Adolescent and Young Adult Cancer Patients.Journal of adolescent and young adult oncology · 2020Article
- Unmet supportive care needs in young adult cancer patients: associations and changes over time. Results from the AYA-Leipzig study.Journal of cancer survivorship : research and practice · 2019Article
- Sociodemographic disparities in the occurrence of medical conditions among adolescent and young adult Hodgkin lymphoma survivors.Cancer causes & control : CCC · 2018Article
- Cardiovascular disease incidence in adolescent and young adult cancer survivors: a retrospective cohort study.Journal of cancer survivorship : research and practice · 2018Article
- Follow-Up Care Provider Preferences of Adolescent and Young Adult Cancer Survivors.Journal of adolescent and young adult oncology · 2018Article
- Modifiable health-related factors (smoking, physical activity and body mass index) and health care use and costs among adult cancer survivors.Journal of cancer research and clinical oncology · 2017Article
- Preventive services use among female survivors of adolescent and young adult cancer.Journal of cancer survivorship : research and practice · 2017Article
- Barriers to follow-up care among survivors of adolescent and young adult cancer.Journal of cancer survivorship : research and practice · 2017Article
- Experiences of Adolescents with Cancer Attending a Tertiary Care Cancer Centre: A Thematic Analysis.Indian journal of palliative careArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
purposeEvaluate health care access and experiences with care among long-term survivors of adolescent and young adult (AYA) cancer relative to a comparison group in the USA.
methodsThe 2008 to 2012 Medical Expenditure Panel Surveys identified 1163 survivors of cancer, diagnosed ages 15-39, current ages 20-64, who were at least 5 years after diagnosis. A comparison group without cancer was matched using age, sex, and other characteristics. Primary outcomes included having ≥1 visit to doctor's office/clinic in the previous year and perceived health care quality (0 = worst to 10 = best; categorized as low (0-4), intermediate (5-7), and high (8-10)). Other experience-related outcomes (e.g., having adequate time with providers and providers show respect) were also evaluated. Bivariate analyses compared these outcomes between survivors and the comparison group. Multivariable logistic regressions identified survivor-level factors associated with health care visits and quality.
resultsSurvivors had ≥1 visit more often (82.1 vs. 75.8 %, p = 0.005) yet rated their health care quality lower (low or intermediate 30.7 vs. 23.6 %, p < 0.001) than the comparison group. Fewer survivors reported always having enough time with providers (41.7 vs. 54.6 %, p < 0.001) and that providers always show respect (57.5 vs. 67.7 %, p = 0.002). Uninsured survivors were less likely to have ≥1 visit (odds ratio (OR) = 0.26, 95 % confidence interval (CI) 0.17-0.40, p < 0.001) and rated their health care quality lower (OR = 0.25, 95 % CI 0.13-0.48, p < 0.001) than privately insured. Many other factors were associated with visits and quality.
conclusionSurvivors of AYA cancer reported more health care visits but worse health care experiences than individuals without cancer. Targeted interventions that may improve survivors' experiences with health care should be evaluated.
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