ArticleHealth services research2016
Breaking Narrative Ground: Innovative Methods for Rigorously Eliciting and Assessing Patient Narratives.
Article in Health services research, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Risks and Benefits of Web-Based Patient Narratives: Systematic Review.Journal of medical Internet research · 2020Pooled it
- Accumulative experiences of recurrent vulvovaginal thrush: a qualitative study of primary care navigation from patient and clinician perspectives.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- 'It's not just thrush, it's recurrent thrush': a qualitative study of patient and clinician perspectives on diagnosing recurrent vulvovaginal candidiasis.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- The Patient Experience Divide: How Income Relates to Care Quality in the Primary Care Setting.Medical care · 2026Article
- Improving Diagnosis: Evaluation of Diagnostic Experiences Classified as Problems, Mistakes, or Both by Patients and Care Partners From a Nationally Representative Survey.Medical care · 2026Article
- Attending to Gyn-Ecology: Managing the 'Mess' of Recurrent Vulvovaginal Thrush.Sociology of health & illness · 2026Article
- Validation of a method for synthesizing public consultations to inform decision-making in health technology assessment (HTA) in Brazil: a Delphi consensus.BMC health services research · 2025Article
- Exploring sociodemographic disparities in diagnostic problems and mistakes in the quest for diagnostic equity: insights from a national survey of patient experiences.Frontiers in public health · 2025Article
- Assessing an innovative method to promote learning from patient narratives: Findings from a field experiment in ambulatory care.Health services research · 2024Article
- Leveraging Patients' Creative Ideas for Innovation in Health Care.The Milbank quarterly · 2024Article
- Experiences Among Patients With Cystic Fibrosis in the MucoExocet Study of Using Connected Devices for the Management of Pulmonary Exacerbations: Grounded Theory Qualitative Research.JMIR formative research · 2024Article
- What matters to you? An observational field study of patient and care provider expectations for health care relationships.PloS one · 2024Observational
- Evaluation of a protocol for eliciting narrative accounts of pediatric inpatient experiences of care.Health services research · 2023Article
- Parents Have More to Say: Comments From the Child HCAHPS Single Question Versus a Narrative Item Set.Hospital pediatrics · 2023Article
- How exposure to patient narratives affects stereotyped choices of primary care clinicians.PloS one · 2023Article
- Use of Home-Based Connected Devices in Patients With Cystic Fibrosis for the Early Detection and Treatment of Pulmonary Exacerbations: Protocol for a Qualitative Study.JMIR research protocols · 2021Article
- A Rigorous Approach to Large-Scale Elicitation and Analysis of Patient Narratives.Medical care research and review : MCRR · 2020Article
- Using patient-reported measures to drive change in healthcare: the experience of the digital, continuous and systematic PREMs observatory in Italy.BMC health services research · 2020Article
- Patient Experience in Primary Care: A Systematic Review of CG-CAHPS Surveys.Journal of patient experience · 2019Article
- Reporting of Patient Experience Data on Health Systems' Websites and Commercial Physician-Rating Websites: Mixed-Methods Analysis.Journal of medical Internet research · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
objectiveTo design a methodology for rigorously eliciting narratives about patients' experiences with clinical care that is potentially useful for public reporting and quality improvement. DATA SOURCES/STUDY
settingTwo rounds of experimental data (N = 48 each) collected in 2013-2014, using a nationally representative Internet panel. STUDY
designOur study (1) articulates and operationalizes criteria for assessing narrative elicitation protocols; (2) establishes a "gold standard" for assessment of such protocols; and (3) creates and tests a protocol for narratives about outpatient treatment experiences. DATA COLLECTION/EXTRACTION
methodsWe randomized participants between telephone and web-based modalities and between protocols placed before and after a closed-ended survey. PRINCIPAL
findingsElicited narratives can be assessed relative to a gold standard using four criteria: (1) meaningfulness, (2) completeness, (3) whether the narrative accurately reflects the balance of positive and negative events, and (4) representativeness, which reflects the protocol's performance across respondent subgroups. We demonstrate that a five-question protocol that has been tested and refined yields three- to sixfold increases in completeness and four- to tenfold increases in meaningfulness, compared to a single open-ended question. It performs equally well for healthy and sick patients.
conclusionsNarrative elicitation protocols suitable for inclusion in extant patient experience surveys can be designed and tested against objective performance criteria, thus advancing the science of public reporting.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.