ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Agreeing the content of a patient-reported outcome measure for primary care: a Delphi consensus study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The Development of a New Patient-Reported Outcome Measure in Recessive Ataxias: The Person-Reported Ataxia Impact Scale.Cerebellum (London, England) · 2024Pooled it
- Establishing the content validity of a new emergency department patient-reported experience measure (ED PREM): a Delphi study.BMC emergency medicine · 2022Pooled it
- Assessing Older Adults' Adherence to Appropriate Polypharmacy: Selection of Outcome Measures for Intervention Trials.Journal of the American Geriatrics Society · 2026Article
- Developing core indicators for identifying people at risk of delayed heart failure diagnosis.BMC primary care · 2025Article
- Measure selection for an electronic patient-reported outcome (ePRO) system for CAR T-cell therapy patients: a modified Delphi consensus study.EClinicalMedicine · 2025Article
- Article
- Development of a patient-reported outcome measure of digital health literacy for chronic patients: results of a French international online Delphi study.BMC nursing · 2023Article
- Achieving consensus on priority items for paediatric palliative care outcome measurement: Results from a modified Delphi survey, engagement with a children's research involvement group and expert item generation.Palliative medicine · 2023Article
- Academic pharmacist competencies in ordinary and emergency situations: content validation and pilot description in Lebanese academia.BMC medical education · 2023Article
- Evaluating the content of a patient-reported outcome measure for people with multimorbidity: a Delphi consensus.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- General practitioners' views on use of patient reported outcome measures in primary care: a cross-sectional survey and qualitative study.BMC family practice · 2020Article
- Neurocognitive disorders: what are the prioritized caregiver needs? A consensus obtained by the Delphi method.BMC health services research · 2018Observational
- Patient understanding of two commonly used patient reported outcome measures for primary care: a cognitive interview study.BMC family practice · 2018Article
- Primary Care Outcomes Questionnaire: psychometric testing of a new instrument.The British journal of general practice : the journal of the Royal College of General Practitioners · 2018Article
- Qualitative assessment of the primary care outcomes questionnaire: a cognitive interview study.BMC health services research · 2018Article
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
backgroundAs the first contact for any health-related need, primary care clinicians often address multiple patient problems, with a range of possible outcomes. There is currently no patient-reported outcome measure (PROM) which covers this range of outcomes. Therefore, many research studies into primary care services use PROMs that do not capture the full impact of these services.
objectiveThe study aim was to identify outcomes sought by primary care patients which clinicians can influence, thus providing the basis for a new primary care PROM.
methodsWe used a Delphi process starting with an outcomes list inductively derived in a prior qualitative study. Thirty-five experts were recruited into patient, clinician and academic panels. Participants rated each outcome on whether it was (i) relevant to health, (ii) influenced by primary care and (iii) detectable by patients. In each round, outcomes which passed/failed preset levels of agreement were accepted/rejected. Remaining outcomes continued to the next round.
resultsThe process resulted in a set of outcomes occupying the domains of health status, health empowerment (internal and external), and health perceptions. Twenty-six of 36 outcomes were accepted for inclusion in a PROM. Primary care having insufficient influence was the main reason for exclusion.
conclusionsTo our knowledge, this is the first time PROM outcomes have been agreed through criteria which explicitly exclude outcomes less relevant to health, uninfluenced by primary care or undetected by patients. The PROM in development covers a unique set of outcomes and offers an opportunity for enhanced research into primary care.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.