Evidence map›Paper›PMID 27118728›Full record

ArticleJournal of diabetes science and technology2016

Impact of Type 1 Diabetes Technology on Family Members/Significant Others of People With Diabetes.

Katharine Barnard, Vincent Crabtree, Peter Adolfsson, Melanie Davies, David Kerr, Amy Kraus, Danielle Gianferante, Elizabeth Bevilacqua, George Serbedzija

Open access · bronzeAbstract read
In one paragraph

Article in Journal of diabetes science and technology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed, 1 pooled it
5.2field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 1 synthesis or guideline pooled it, 61 citations in OpenAlex.

  1. Pooled it
  2. Trial
  3. Article
  4. Article
  5. Review
  6. Article
  7. Article
  8. Article
  9. Expanding the Role of Continuous Glucose Monitoring in Modern Diabetes Care Beyond Type 1 Disease.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2023
    Review
  10. Review
  11. Article
  12. Observational
  13. Review
  14. Article
  15. Article
  16. Couples Managing Type 1 Diabetes Using Diabetes Technology.Diabetes spectrum : a publication of the American Diabetes Association · 2021
    Article
  17. Article
  18. "I've Had an Alarm Set for 3:00 a.m. for Decades": The Impact of Type 1 Diabetes on Sleep.Clinical diabetes : a publication of the American Diabetes Association · 2021
    Article
  19. Review
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors at 6 institutions in 3 countries.

Katharine BarnardFaculty of Health & Social Science, Bournemouth University, Bournemouth, UK kbarnard@bournemouth.ac.uk.
Vincent CrabtreeJDRF, New York, NY, USA.
Peter AdolfssonInstitute of Clinical Sciences, Sahlgrenska Academy at University of Gothenburg, Hospital of Halland, Kungsbacka, Sweden.
Melanie DaviesDiabetes Research Centre, University of Leicester, UK.
David KerrWilliam Sansum Diabetes Center, Santa Barbara, CA, USA.
Amy KrausT1D Exchange, Boston, MA, USA.
Danielle GianferanteT1D Exchange, Boston, MA, USA.
Elizabeth BevilacquaT1D Exchange, Boston, MA, USA.
George SerbedzijaT1D Exchange, Boston, MA, USA.
T1D Exchange · USBournemouth University · GBBreakthrough T1D · USSansum Diabetes Research Institute · USUniversity of Gothenburg · SEUniversity of Leicester · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe aim was to explore the impact of diabetes-related technology to ensure that such devices are used in a way that returns maximum benefit from a medical and psychological perspective.

methodSpouses and caregivers of people with type 1 diabetes were invited to complete an online questionnaire about their experiences with diabetes technologies used by their family members. Participants were recruited via the Glu online community website. Questions explored impact on daily living, frequency and severity of hypoglycemia, and diabetes-related distress.

resultsIn all, 100 parents/caregivers and 74 partners participated in this survey. Average (mean) duration of living with a person with type 1 diabetes was 16 years (SD = 13) for partners, with duration of diabetes for children being 4.2 ± 3.2 years. Average duration of current therapy was 8.3 ± 7.3 years for adults and 3.4 ± 2.9 years for children. Of the participants, 86% partners and 82% parents/caregivers reported diabetes technology had made it easier for their family members to achieve blood glucose targets. Compared to partners, parents/caregivers reported more negative emotions (P < .001) and decreased well-being (P < .001) related to their family members type 1 diabetes. Diabetes-related distress was common, as was sleep disturbance associated with device alarms and fear of hypoglycemia. Reduced frequency and severity of hypoglycemia related to device use was reported by approximately half of participants.

conclusionThere is little doubt about the medical benefit of diabetes technologies and their uptake is increasing but some downsides were reported. Barriers to uptake of technologies lie beyond the mechanics of diabetes management. Supporting users in using diabetes technology to achieve the best possible glycemic control, in the context of their own life, is crucial. Furthermore, understanding these issues with input from the type 1 diabetes community including family members and caregivers will help innovation and design of new technology.

Indexed as

Diabetes Mellitus, Type 1AdolescentAdultBlood Glucose Self-MonitoringCaregiversFemaleHumansInsulin Infusion SystemsMaleMiddle AgedParentsSurveys and QuestionnairesYoung AdultCGMCSIIdiabetes technologypsychosocial burdentype 1 diabetes

Identifiers

PMID27118728
PMCPMC4928241
OpenAlexW2343543601

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.