ArticleSAGE open medicine2016
Patient perceptions of implantable cardioverter-defibrillator deactivation discussions: A qualitative study.
Article in SAGE open medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
5 citing papers in PubMed, 1 synthesis or guideline pooled it, 19 citations in OpenAlex.
- Unmet device reprogramming needs at the end of life among patients with implantable cardioverter defibrillator: A systematic review and meta-analysis.Palliative medicine · 2020Pooled it
- Screening and Needs Assessment Tools for Palliative Care in Patients with Cardiovascular Disease: Narrative Review.Current heart failure reports · 2025Review
- [Device therapy in cardiological palliative care situations].Herzschrittmachertherapie & Elektrophysiologie · 2019Review
- Implantable cardioverter defibrillator knowledge and end-of-life device deactivation: A cross-sectional survey.Palliative medicine · 2018Article
- A systematic review of questionnaires about patient's values and preferences in clinical practice guidelines.Patient preference and adherence · 2018Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is a class I recommendation for implantable cardioverter-defibrillator deactivation discussions to occur between physicians and heart failure patients. Few studies have reported the patient's perspective on the timing of implantable cardioverter-defibrillator deactivation discussions.
aimTo determine patient awareness, preferences and timing of implantable cardioverter-defibrillator deactivation discussions.
designGrounded theory was used to collect and analyze interview data from 25 heart failure patients with an implantable cardioverter-defibrillator. SETTING AND
participantsPatients with an implantable cardioverter-defibrillator, from the Heart Function Clinic at University Health Network (Toronto, Canada).
resultsThe sample (n = 25) was predominately male (76%) with an average age of 62 years. Patients identified three stages where they felt implantable cardioverter-defibrillator deactivation should be discussed: (1) prior to implantation, (2) with any significant deterioration but while they were of sound mind to engage in and communicate their preferences and (3) at end of life, where patients wished further review of their previously established preferences and decisions about implantable cardioverter-defibrillator deactivation. Most patients (n = 17, 68%) said they would consider deactivation, six (24%) were undecided and two (8%) were adamant they would never turn it off.
conclusionThe patient preferences identified in this study support the need to include information on implantable cardioverter-defibrillator deactivation at implant, with change in clinical status and within broader discussions about end-of-life treatment preferences. Using this process to help patients determine and communicate their implantable cardioverter-defibrillator deactivation preferences may reduce the number of patients experiencing distressing implantable cardioverter-defibrillator shocks at end of life.
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Registered trials
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