ArticleChild: care, health and development2016
You never transition alone! Exploring the experiences of youth with chronic health conditions, parents and healthcare providers on self-management.
Article in Child: care, health and development, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
24 citing papers in PubMed, 65 citations in OpenAlex.
- Support After Adolescent Behavioral Weight Loss Treatment During the Transition Into Emerging Adulthood: Qualitative Study.JMIR formative research · 2026Article
- An e-health transition intervention for youth with brain-based disabilities: Pilot and feasibility results from a Randomized Controlled Trial.Health care transitions · 2026Article
- Design and rationale for Exploring Predictors of successful healthCare Transition for adolescents with chronic conditions in a longitudinal explorative cohort.Health care transitions · 2026Article
- Prevalence, predictors, and moderators of transfer in primary care.Health care transitions · 2026Article
- Involving Adolescents in Decision-Making in Pediatric Organ Transplantation: A Qualitative Study in Switzerland.Pediatric transplantation · 2025Article
- A qualitative analysis of self-management needs of adolescents and young adults living with perinatally acquired HIV in rural, southwestern Uganda.PLOS global public health · 2024Article
- Riding the wave: A grounded theory of transplant transition in adolescents and youth adults.Health care transitions · 2023Article
- Parental Involvement in the Transition from Paediatric to Adult Care for Youth with Chronic Illness: A Scoping Review of the North American Literature.International journal of pediatrics · 2023Article
- Correlates of Mental Health in Adolescents and Young Adults with Cerebral Palsy: A Cross-Sectional Analysis of the MyStory Project.Journal of clinical medicine · 2022Article
- Lifespan healthcare transitions among individuals with intersex traits in Canada: a mixed-methods and qualitative study.BMJ open · 2022Review
- Professionals' motivation to support parental self-management regarding children with physical disability in Dutch rehabilitation services: 'Please mind your gap'.Child: care, health and development · 2021Article
- Putting the Patient First: A Scoping Review of Patient Desires in Canada.Healthcare policy = Politiques de sante · 2021Article
- The indirect effect of family communication patterns on young adults' health self-disclosure: Understanding the role of descriptive and injunctive norms in a test of the integrative model of behavioral prediction.Communication reports (Pullman, Wash.) · 2021Article
- Canadian Resources for Siblings of Youth With Chronic Health Conditions to Inform and Support With Healthcare Management: A Qualitative Document Analysis.Frontiers in rehabilitation sciences · 2021Review
- Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities.Autism : the international journal of research and practice · 2019Review
- Medicaid and CHIP Child Health Beneficiary Incentives: Program Landscape and Stakeholder Insights.Pediatrics · 2019Review
- A Two-Way Interactive Text Messaging Application for Low-Income Patients with Chronic Medical Conditions: Design-Thinking Development Approach.JMIR mHealth and uHealth · 2019Article
- Transitioning in hydrocephalus: Current practices in Canadian Paediatric Neurosurgery centres.Paediatrics & child health · 2018Article
- A longitudinal, observational study of the features of transitional healthcare associated with better outcomes for young people with long-term conditions.BMC medicine · 2018Observational
- Moving on: A survey of Canadian nurses' self-reported transition practices for young people with chronic pain.Canadian journal of pain = Revue canadienne de la douleur · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundRecent evidence suggests that fostering strategies to enable youth with chronic health conditions to work towards gradual self-management of their health is key in successful transition to adult healthcare. To date, there is limited research on self-management promotion for youth. The purpose of this study is to explore self-management from the perspectives of youth, parents and healthcare providers in transition to adult healthcare.
methodsPart of a larger longitudinal transition (TRACE-2009-2013) study, interpretive phenomenology was used to explore the meaning of the lived experiences and perceptions of youth, parents, and healthcare providers about transition to adult healthcare. Purposeful sampling was utilized to select youth with a range of chronic health conditions from the TRACE cohort (spanning 20 diagnoses including developmental disabilities and chronic conditions), their parents and healthcare providers.
resultsThe emerging three themes were: increasing independence of youth; parents as safety nets and healthcare providers as enablers and collaborators. The findings indicate that the experiences of transitioning youth, parents and service providers are interconnected and interdependent.
conclusionsResults support a dynamic and developmentally appropriate approach when working with transitioning youth and parents in practice. As youth depend on parents and healthcare providers for support in taking charge of their own health, parents and healthcare providers must work together to enable youth for self-management. At a policy level, adequate funding, institutional support and accreditation incentives are recommended to allow for designated time for healthcare providers to foster self-management skills in transitioning youth and parents.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.