ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Patient involvement in the development of a handbook for moderate rheumatoid arthritis.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed.
- Trial
- Personalised care packages for people with rheumatoid arthritis: a mixed-methods study.RMD open · 2024Article
- Patient and public involvement in an international rheumatology translational research project: an evaluation.BMC rheumatology · 2022Article
- Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Baseline predictors of remission, pain and fatigue in rheumatoid arthritis: the TITRATE trial.Arthritis research & therapy · 2021Article
- Patient Empowerment: Apni Jung (Our Fight) against Rheumatoid Arthritis for South Asian Population.Mediterranean journal of rheumatology · 2021Article
- Using a citizens' jury approach to determine a good nutrition resource for pregnant women.Public health nutrition · 2020Article
- Comparing reactions to written leaflets, online information and real-time Doppler images among South Asian patients with rheumatoid arthritis.Rheumatology advances in practice · 2020Article
- Intensive management for moderate rheumatoid arthritis: a qualitative study of patients' and practitioners' views.BMC rheumatology · 2019Article
- The Use of Web-Based Technologies in Health Research Participation: Qualitative Study of Consumer and Researcher Experiences.Journal of medical Internet research · 2018Article
- Qualitative Methods to Advance Care, Diagnosis, and Therapy in Rheumatic Diseases.Rheumatic diseases clinics of North America · 2018Review
- Development of Evidence-Based Disease Education Literature for Pakistani Rheumatoid Arthritis Patients.Diseases (Basel, Switzerland) · 2017Article
- Patient involvement in rheumatology outpatient service design and delivery: a case study.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Rheumatoid arthritis - an update for general dental practitioners.British dental journal · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundSelf-management is a key recommendation for people with rheumatoid arthritis (RA). Educational materials may support self-management, and increasingly patients are becoming involved with the development of these materials. The TITRATE trial compares the effectiveness of intensive management to standard care in patients with moderate RA across England. As part of the intensive management intervention, participants are given a handbook. AIM AND
objectivesThe aim of this study was to develop a handbook to support the intensive management. The objectives were to: (i) involve patients in the identification of relevant information for inclusion in the TITRATE handbook; (ii) ensure the content of the handbook is acceptable and accessible.
designWe held an audio-taped workshop with RA patients. The transcript of the workshop was analysed using thematic content analysis.
resultsFive main themes were identified as follows: 'rheumatoid arthritis treatment, perceptions of rheumatoid arthritis, the importance of individualized goals, benefits of self-management and the patient handbook'. Feedback from the workshop was incorporated into the handbook, and patients' anonymous testimonies were added.
conclusionThis study demonstrates that patient contribution to the development of educational material to support intensive management of RA is both feasible and valuable. A qualitative evaluation of the use and impact of the handbook with patients and practitioners is planned on completion of the TITRATE trial.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.