ArticleThe patient2016
Support for Living a Meaningful Life with Osteoarthritis: A Patient-to-Patient Research Study.
Article in The patient, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The use of co-production, co-design and co-creation to mobilise knowledge in the management of health conditions: a systematic review.BMC health services research · 2022Pooled it
- Fostering Physician-Patient Partnerships: The Importance of Embracing the Ontological and Epistemological Understandings of Knowledge.Health expectations : an international journal of public participation in health care and health policy · 2025Review
- A synthesis of qualitative research to understand the complexity behind treatment decision-making for osteoarthritis.Osteoarthritis and cartilage open · 2023Article
- Wait time management strategies at centralized intake system for hip and knee replacement surgery: A need for a blended evidence-based and patient-centered approach.Osteoarthritis and cartilage open · 2022Article
- Article
- A patient-led, peer-to-peer qualitative study on the psychosocial relationship between young adults with inflammatory bowel disease and food.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Relationship between knee joint discomfort, self-management behavior, and quality of life in the middle-aged and elderly people in China: A cross-sectional study.Frontiers in public health · 2022Article
- Long wait times for knee and hip total joint replacement in Canada: An isolated health system problem, or a symptom of a larger problem?Osteoarthritis and cartilage open · 2021Article
- Patient-reported outcome measures (PROMs): can they be used to guide patient-centered care and optimize outcomes in total knee replacement?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2020Article
- Co-Design in the Development of a Mobile Health App for the Management of Knee Osteoarthritis by Patients and Physicians: Qualitative Study.JMIR mHealth and uHealth · 2020Article
- Factors associated with access to health services and quality of life in knee osteoarthritis patients: a multilevel cross-sectional study.BMC health services research · 2019Article
- Co-design of a patient experience survey for arthritis central intake: an example of meaningful patient engagement in healthcare design.BMC health services research · 2019Article
- Article
- Patient perspectives on engagement in decision-making in early management of non-ST elevation acute coronary syndrome: a qualitative study.BMC medical informatics and decision making · 2017Article
- General practitioners' perspectives on a proposed new model of service delivery for primary care management of knee osteoarthritis: a qualitative study.BMC family practice · 2017Article
- Patients as partners in Enhanced Recovery After Surgery: A qualitative patient-led study.BMJ open · 2017Article
- Successful Stepwise Development of Patient Research Partnership: 14 Years' Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT).The patient · 2017Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectiveThis study addresses the perspectives of patients with osteoarthritis (OA) about the gap between available support and their needs, with a focus on patient experience and what is important to them. It was a key component of a research initiative to co-develop an evidence-based model for central referral from primary to specialty care for arthritis patients.
methodsPatients with OA and trained in engagement methods used adapted qualitative methods to co-design and conduct the study. OA patients (N = 25) participated in a three-step peer-to-peer process: a focus group clarified and explored the topic ("set"), and guided the creation of the interview guide used in the second phase ("collect"). Using a collaborative analysis process, the researchers identified eight concepts that they then brought to a last focus group ("reflect"). Here, participants reviewed the findings, identifying implications for arthritis care in Alberta, Canada.
resultsAn overarching theme of "supporting us in managing a meaningful life with OA" was underpinned by three components of quality care: (1) right knowledge-specific and detailed knowledge and information; (2) right professional support-ongoing access to health professionals with OA expertise; and (3) right professional relationship-a partnership with health professionals who help them develop and revise personal self-management plans.
conclusionPeer-to-peer research informed and challenged the research team and stakeholders to consider the need for upstream support for OA patients. Results are helping to transform arthritis care, shifting the health system from an acute episodic model to one that meets the needs of the growing number of patients with chronic diseases.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.