ArticleClinical journal of the American Society of Nephrology : CJASN2016
Provider Perspectives on Advance Care Planning for Patients with Kidney Disease: Whose Job Is It Anyway?
Article in Clinical journal of the American Society of Nephrology : CJASN, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 45 papers, 2 of them syntheses that pooled it.
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Who cites it
45 citing papers in PubMed, 2 syntheses or guidelines pooled it, 120 citations in OpenAlex.
- Experiences and perspectives of older adults in nursing homes and their families participating in advance care planning: a meta-synthesis of qualitative studies.BMC palliative care · 2025Pooled it
- Experiences and perspectives of healthcare professionals implementing advance care planning for people suffering from life-limiting illness: a systematic review and meta-synthesis of qualitative studies.BMC palliative care · 2023Pooled it
- Older Patients and Conservative Kidney Management.JAMA network open · 2026Article
- Engaging Dialysis Teams in Shared Decision-Making Conversations With Patients to Improve Rates of Kidney Transplantation.Kidney medicine · 2026Article
- "Leave a Little Ray of Hope": Perspectives From Providers, Patients, and Caregivers on Palliative Care and Future Health Care Planning for Patients Ineligible for Kidney Transplantation.Kidney medicine · 2026Article
- The nearness of the state: substitution practices at the ragged ends of life in the U.S.BioSocieties · 2026Article
- Nephrology providers' perspective and use of mortality prognostic tools in dialysis patients.BMC nephrology · 2024Article
- Telehealth for Goals of Care Conversations in Advanced CKD: A Mixed-Methods Pilot Study of US Veterans and Their Clinicians.Kidney medicine · 2024Article
- Navigating chronic uncertainty: a theory synthesis for nursing communication in life-limiting illness.BMC nursing · 2024Article
- Development of a Resource for Health Professionals to Raise Advance Care Planning Topics During Kidney Care Consultations: A Multiple User-Centered Design.Kidney medicine · 2024Article
- Making advance care planning easier for adults with kidney disease and their clinicians.Nature reviews. Nephrology · 2024Article
- Perspectives on the optimal timing of advance care planning among Japanese patients undergoing dialysis and clinicians: a cross-sectional study.Clinical and experimental nephrology · 2024Article
- Advance care planning for patients with end-stage kidney disease on dialysis: narrative review of the current evidence, and future considerations.Journal of nephrology · 2024Review
- "Systems seem to get in the way": a qualitative study exploring experiences of accessing and receiving support among informal caregivers of people living with chronic kidney disease.BMC nephrology · 2024Article
- Nephrology-Palliative Care Collaboration to Promote Outpatient Hemodialysis Goals of Care Conversations.Federal practitioner : for the health care professionals of the VA, DoD, and PHS · 2023Article
- Fighting Fires and Battling the Clock: Advance Care Planning in Family Medicine Residency.Family medicine · 2023Article
- Kidney Clinicians' Perceptions of Challenges and Aspirations to Improve End-Of-Life Care Provision.Kidney international reports · 2023Article
- Clinicians' Perceptions of Collaborative Palliative Care Delivery in Chronic Kidney Disease.Journal of pain and symptom management · 2022Article
- Top Ten Tips Palliative Care Clinicians Should Know About Solid Organ Transplantation.Journal of palliative medicine · 2022Article
- "Don't Talk to Them About Goals of Care": Understanding Disparities in Advance Care Planning.The journals of gerontology. Series A, Biological sciences and medical sciences · 2022Article
Corrections and comments
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Authors and funding
8 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
objectivesThere is growing interest in efforts to enhance advance care planning for patients with kidney disease. Our goal was to elicit the perspectives on advance care planning of multidisciplinary providers who care for patients with advanced kidney disease. DESIGN, SETTING, PARTICIPANTS, & MEASUREMENTS: Between April and December of 2014, we conducted semistructured interviews at the Department of Veterans Affairs Puget Sound Health Care System with 26 providers from a range of disciplines and specialties who care for patients with advanced kidney disease. Participants were asked about their perspectives and experiences related to advance care planning in this population. Interviews were audiotaped, transcribed, and analyzed inductively using grounded theory.
resultsThe comments of providers interviewed for this study spoke to significant system-level barriers to supporting the process of advance care planning for patients with advanced kidney disease. We identified four overlapping themes: (1) medical care for this population is complex and fragmented across settings and providers and over time; (2) lack of a shared understanding and vision of advance care planning and its relationship with other aspects of care, such as dialysis decision making; (3) unclear locus of responsibility and authority for advance care planning; and (4) lack of active collaboration and communication around advance care planning among different providers caring for the same patients.
conclusionsThe comments of providers who care for patients with advanced kidney disease spotlight both the need for and the challenges to interdisciplinary collaboration around advance care planning for this population. Systematic efforts at a variety of organizational levels will likely be needed to support teamwork around advance care planning among the different providers who care for patients with advanced kidney disease.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.