ArticleBMJ supportive & palliative care2019
Many people in Scotland now benefit from anticipatory care before they die: an after death analysis and interviews with general practitioners.
Article in BMJ supportive & palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 30 papers, 2 of them syntheses that pooled it.
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Who cites it
30 citing papers in PubMed, 2 syntheses or guidelines pooled it, 58 citations in OpenAlex.
- Equitable inclusion of patients with cancer on the palliative care register: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- Palliative Care in Early Dementia.Journal of pain and symptom management · 2024Pooled it
- Attitudes to earlier advance care planning: a qualitative interview study in general practice.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- Application effect of anticipatory care in postoperative infection and complication management in children with acute appendicitis.World journal of gastrointestinal surgery · 2025Article
- Advance care planning before and during the COVID-19 pandemic: an observational cohort study of 73 675 patients' records.BJGP open · 2024Article
- Factors influencing deprescribing in primary care for those towards the end of life: A qualitative interview study with patients and healthcare practitioners.Palliative medicine · 2024Article
- Implementing advance care planning in palliative and end of life care: a scoping review of community nursing perspectives.BMC geriatrics · 2024Article
- Developing and pilot testing a frailty-focused education and communication training workshop.PEC innovation · 2022Article
- Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-stage design.Palliative medicine · 2022Article
- Advance care planning in primary care: a retrospective medical record study among patients with different illness trajectories.BMC palliative care · 2022Article
- Palliative care research promotion in policy and practice: a knowledge exchange process.BMJ supportive & palliative care · 2021Article
- Treatment withdrawal of the patient on end of life: An analysis of values, ethics and guidelines in palliative care.Nursing open · 2021Article
- Frequency of providing a palliative approach to care in family practice: a chart review and perceptions of healthcare practitioners in Canada.BMC family practice · 2021Article
- Bolstering General Practitioner Palliative Care: A Critical Review of Support Provided by Australian Guidelines for Life-Limiting Chronic Conditions.Healthcare (Basel, Switzerland) · 2020Review
- Unscheduled and out-of-hours care for people in their last year of life: a retrospective cohort analysis of national datasets.BMJ open · 2020Article
- Article
- A narrative review of facilitating and inhibiting factors in advance care planning initiation in people with dementia.European geriatric medicine · 2020Review
- Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2020Article
- Primary palliative care research: opportunities and challenges.BMJ supportive & palliative care · 2019Article
- How do physicians and nurses in family practice describe their care for patients with progressive life-limiting illness? A qualitative study of a 'palliative approach'.Primary health care research & development · 2019Article
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Authors and funding
10 authors at 5 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundKey Information Summaries (KIS) were introduced throughout Scotland in 2013 so that anticipatory care plans written by general practitioners (GPs) could be routinely shared electronically and updated in real time, between GPs and providers of unscheduled and secondary care.
aimsWe aimed to describe the current reach of anticipatory and palliative care, and to explore GPs' views on using KIS.
methodsWe studied the primary care records of all patients who died in 2014 in 9 diverse Lothian practices. We identified if anticipatory or palliative care had been started, and if so how many weeks before death and which aspects of care had been documented. We interviewed 10 GPs to understand barriers and facilitating factors.
resultsOverall, 60% of patients were identified for a KIS, a median of 18 weeks before death. The numbers identified were highest for patients with cancer, with 75% identified compared with 66% of those dying with dementia/frailty and only 41% dying from organ failure. Patients were more likely to die outside hospital if they had a KIS. GPs identified professional, patient and societal challenges in identifying patients for palliative care, especially those with non-cancer diagnoses.
conclusionsGPs are identifying patients for anticipatory and palliative care more equitably across the different disease trajectories and earlier in the disease process than they were previously identifying patients specifically for palliative care. However, many patients still lack care planning, particularly those dying with organ failure.
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