Trial reportJournal of health communication2016
Guiding Oncology Patients Through the Maze of Precision Medicine.
Trial report in Journal of health communication, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Challenges and Opportunities for Professional Medical Publications Writers to Contribute to Plain Language Summaries (PLS) in an AI/ML Environment - A Consumer Health Informatics Systematic Review.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2023Pooled it
- Health Literacy Interventions in Cancer: a Systematic Review.Journal of cancer education : the official journal of the American Association for Cancer Education · 2021Pooled it
- Clinical decision support for therapeutic decision-making in cancer: A systematic review.International journal of medical informatics · 2019Pooled it
- The Patient in Precision Medicine: A Systematic Review Examining Evaluations of Patient-Facing Materials.Journal of healthcare engineering · 2018Pooled it
- Bridging the Divide: A Review on the Implementation of Personalized Cancer Medicine.Journal of personalized medicine · 2024Review
- Survey of Danish Head and Neck Cancer Patients' Positions on Personalized Medicine, Gene Tests, and Personalized Follow-Up.Journal of personalized medicine · 2024Article
- Variability in conceptualizations and measurement of genetic literacy.PEC innovation · 2023Article
- "How is it going to help?": Exploring Black breast cancer patients' questions about biomarker testing to predict chemotherapy-induced peripheral neuropathy.PEC innovation · 2023Article
- Physician Communication and Patient Understanding of Molecular Testing Terminology.The oncologist · 2021Article
- Patient and public understanding of the concept of 'personalised medicine' in relation to cancer treatment: a systematic review.Future healthcare journal · 2021Review
- My Cancer Genome: Coevolution of Precision Oncology and a Molecular Oncology Knowledgebase.JCO clinical cancer informatics · 2021Article
- Consensus statement of the Spanish Society of Internal Medicine and the Spanish Society of Medical Oncology on secondary thromboprophylaxis in patients with cancer.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2021Article
- Community education to enhance the more equitable use of precision medicine in Northern Manhattan.Journal of genetic counseling · 2020Article
- Molecular profiling for precision cancer therapies.Genome medicine · 2020Review
- Quality, Readability, and Understandability of German Booklets Addressing Melanoma Patients.Journal of cancer education : the official journal of the American Association for Cancer Education · 2019Article
- Internet-Based Assessment of Oncology Health Care Professional Learning Style and Optimization of Materials for Web-Based Learning: Controlled Trial With Concealed Allocation.Journal of medical Internet research · 2017Article
- Enabling a genetically informed approach to cancer medicine: evaluation of the impact of comprehensive tumor sequencing.Personalized medicine · 2017Article
- Electronic Communication Channel Use and Health Information Source Preferences Among Latinos in Northern Manhattan.Journal of community health · 2017Article
- My Cancer Genome: Evaluating an Educational Model to Introduce Patients and Caregivers to Precision Medicine Information.AMIA Joint Summits on Translational Science proceedings. AMIA Joint Summits on Translational Science · 2016Article
- Educational needs of people with COPD or asthma entering pulmonary rehabilitation and their significant others: A cross-sectional study.Chronic respiratory diseaseArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors.
Funding
Abstract
As the role of genomics in health care grows, patients increasingly require adequate genetic literacy to fully engage in their care. This study investigated a model for delivering consumer-friendly genetic information to improve understanding of precision medicine using health literacy and learning style principles. My Cancer Genome (MCG), a freely available cancer decision support tool, was used as a testbed. MCG content on a melanoma tumor mutation, BRAF V600E, was translated to a 6th-grade reading level, incorporating multiple learning modalities. A total of 90 patients and caregivers were recruited from a melanoma clinic at an academic medical center and randomized to 3 groups. Group A (control) received an exact copy of text from MCG. Group B was given the same content with hyperlinks to videos explaining key genetic concepts, identified and labeled by the team as knowledge pearls. Group C received the translated content with the knowledge pearls embedded. Changes in knowledge were measured through pre and post questionnaires. Group C showed the greatest improvement in knowledge. The study results demonstrate that providing information based on health literacy and learning style principles can improve patients' understanding of genetic concepts, thus increasing their likelihood of taking an active role in any decision making concerning their health.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.