ArticlePatient preference and adherence2016
The interactive web-based program MSmonitor for self-management and multidisciplinary care in multiple sclerosis: utilization and valuation by patients.
Article in Patient preference and adherence, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 23 citations in OpenAlex.
- Nurse-Led Digital Interventions for Patients with Multiple Sclerosis: A Scoping Review.Medical sciences (Basel, Switzerland) · 2026Article
- Medication self-management toolkits for adults with multiple sclerosis: A scoping review.Exploratory research in clinical and social pharmacy · 2023Article
- Sexual Motivation in Persons with Multiple Sclerosis: A Controlled Cross-Sectional Study.Degenerative neurological and neuromuscular disease · 2023Article
- A mobile app (IDoThis) for multiple sclerosis self-management: development and initial evaluation.BMC medical informatics and decision making · 2022Article
- Article
- Electronic Health Diary Campaigns to Complement Longitudinal Assessments in Persons With Multiple Sclerosis: Nested Observational Study.JMIR mHealth and uHealth · 2022Observational
- Electronic Patient-Reported Outcome Measures in Burn Scar Rehabilitation: A Guide to Implementation and Evaluation.European burn journal · 2022Article
- Mobile health (mHealth) usage, barriers, and technological considerations in persons with multiple sclerosis: a literature review.JAMIA open · 2021Review
- Benefits and Disadvantages of Electronic Patient-reported Outcome Measures: Systematic Review.JMIR perioperative medicine · 2020Review
- The Interactive Web-Based Program MSmonitor for Self-Management and Multidisciplinary Care in Persons With Multiple Sclerosis: Quasi-Experimental Study of Short-Term Effects on Patient Empowerment.Journal of medical Internet research · 2020Article
- The Use of Digital and Remote Communication Technologies as a Tool for Multiple Sclerosis Management: Narrative Review.JMIR rehabilitation and assistive technologies · 2018Article
- Health-Related Quality of Life in Patients with Multiple Sclerosis: Impact of Disease-Modifying Drugs.CNS drugs · 2017Review
- Glatiramer acetate treatment persistence - but not adherence - in multiple sclerosis patients is predicted by health-related quality of life and self-efficacy: a prospective web-based patient-centred study (CAIR study).Health and quality of life outcomes · 2017Article
- Exploring Self-management Needs of Persons With Multiple Sclerosis: A Qualitative Study for Mobile Application Development.International journal of MS careArticle
Corrections and comments
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Authors and funding
17 authors at 11 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMSmonitor is an interactive web-based program for self-management and integrated, multidisciplinary care in multiple sclerosis.
methodsTo assess the utilization and valuation by persons with multiple sclerosis, we held an online survey among those who had used the program for at least 1 year. We evaluated the utilization and meaningfulness of the program's elements, perceived use of data by neurologists and nurses, and appreciation of care, self-management, and satisfaction.
resultsFifty-five persons completed the questionnaire (estimated response rate 40%). The Multiple Sclerosis Impact Profile (MSIP), Medication and Adherence Inventory, Activities Diary, and electronic consultation (e-consult) were used by 40%, 55%, 47%, and 44% of respondents and were considered meaningful by 83%, 81%, 54%, and 88%, respectively. During out-patient consultations, nurses reportedly used the MSmonitor data three to six times more frequently than neurologists. As to nursing care, more symptoms were dealt with (according to 54% of respondents), symptoms were better discussed (69%), and the overall quality of care had improved (60%) since the use of the program. As to neurological care, these figures were 24%, 31%, and 27%, respectively. In 46% of the respondents, the insight into their symptoms and disabilities had increased since the use of the program; the MSIP, Activities Diary, and e-consult had contributed most to this improvement. The overall satisfaction with the program was 3.5 out of 5, and 73% of the respondents would recommend the program to other persons with multiple sclerosis.
conclusionA survey among persons with multiple sclerosis using the MSmonitor program showed that the MSIP, Medication and Adherence Inventory, Activities Diary, and e-consult were frequently used and that the MSIP, Medication and Adherence Inventory, and e-consult were appreciated the most. Moreover, the quality of nursing care, but not so neurological care, had improved, which may relate to nurses making more frequent use of the MSmonitor data than neurologists.
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