Evidence map›Paper›PMID 27037384›Full record

ArticleClinical medicine (London, England)2016

What does quality healthcare look like to adolescents and young adults? Ask the experts!

Melinda Edwards, Caron Lawson, Safiyyah Rahman, Kerry Conley, Hannah Phillips, Rebecca Uings

Abstract read
In one paragraph

Article in Clinical medicine (London, England), 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Article
  3. Review
  4. Article
  5. Optimising care and follow-up of adults with achondroplasia.Orphanet journal of rare diseases · 2022
    Article
  6. Adolescent and young adult patients as co-researchers: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2021
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Melinda EdwardsEvelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK melinda.edwards@gstt.nhs.uk.
Caron LawsonEvelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust, London, UK.
Safiyyah RahmanGuy's and St Thomas' NHS Foundation Trust, London, UK.
Kerry ConleyGuy's and St Thomas' NHS Foundation Trust, London, UK.
Hannah PhillipsGuy's and St Thomas' NHS Foundation Trust, London, UK.
Rebecca UingsGuy's and St Thomas' NHS Foundation Trust, London, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

It is widely recognised that developmentally appropriate services for adolescents and young people improve both healthcare experience and health outcomes. However, there is limited evidence of using young people's expertise to evaluate services, or of young people participating in service developments or design to meet their healthcare needs. This report covers both the process and outcomes of a collaborative project with a group of young people (aged 17-25 years) who are 'experts by experience'. We used qualitative mixed methodology to derive themes from narrative accounts of these young people's healthcare experiences to develop an assessment framework that they identified as being relevant to evaluating services. Informing young people about other assessment measures currently in use (including the Department of Health's You're Welcome quality criteria) enabled the group to further develop their views and refine their proposed assessment framework. This paper is co-authored with young people, enabling them to directly voice their views about healthcare services. Reflections on this process and recommendations for working more collaboratively with young people to evaluate healthcare services are also given.

Indexed as

Health Services ResearchQuality of Health CareAdolescentAdolescent Health ServicesAdultConfidentialityHumansPhysician-Patient RelationsYoung AdultAdolescentsevaluationinvolvementservicesyoung adults

Identifiers

PMID27037384
PMCPMC4952968

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.