ArticleJournal of the American Medical Informatics Association : JAMIA2016
Patients, care partners, and shared access to the patient portal: online practices at an integrated health system.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 50 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Involving Family to Improve Communication in Breast Cancer Care
Sharing Healthcare Wishes in Primary Care
Who cites it
50 citing papers in PubMed, 2 syntheses or guidelines pooled it, 79 citations in OpenAlex.
- Quantifying Patient Portal Use: Systematic Review of Utilization Metrics.Journal of medical Internet research · 2021Pooled it
- Interventions to increase patient portal use in vulnerable populations: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2019Pooled it
- Qualitative evaluation of the SHARING Choices trial of primary care advance care planning for adults with and without dementia.Journal of the American Geriatrics Society · 2024Trial
- Relationship between adult and family supporter health literacy levels and supporter roles in diabetes management.Families, systems & health : the journal of collaborative family healthcare · 2021Trial
- Sharing in care: engaging care partners in the care and communication of breast cancer patients.Breast cancer research and treatment · 2019Trial
- Digital Health Engagement Behaviors in US Family Caregivers: Trend Analysis Using the Health Information National Trends Survey 2019-2022 Data.Journal of medical Internet research · 2026Article
- Sociodemographic Factors Associated with the Utilization of Digital Health Technologies Among Informal Caregivers: A Nationwide Study in the USA, 2022.Journal of racial and ethnic health disparities · 2026Article
- Patient Portal Use Among Admitted Surgical Patients Following the 21st Century Cures Act.JAMA surgery · 2025Article
- Users' perspectives on a demonstration to increase shared access to older adults' patient portals.BMC health services research · 2025Article
- Experiences of Older Mental Health Patients and Their Care Partners Using a Proxy Account to Access Open Notes: Qualitative Interview Study.JMIR aging · 2025Article
- A Multisite Demonstration of Shared Access to Older Adults' Patient Portals.JAMA network open · 2025Article
- Optimizing better health and care for older adults and their family caregivers: A review of geriatric approaches.Journal of the American Geriatrics Society · 2024Article
- Use of the Patient Portal to Discuss Medications Among People with Dementia and Their Care Partners.Journal of general internal medicine · 2024Article
- Embedding Authorship Identity into a Portal-Based Agenda Setting Intervention to Support Older Adults and Care Partners.Journal of general internal medicine · 2024Article
- Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis.BMJ quality & safety · 2024Article
- Patient Portals Fail to Collect Structured Information About Who Else is Involved in a Person's Care.Journal of medical Internet research · 2024Article
- Care Partner Engagement in Secure Messaging Between Patients With Diabetes and Their Clinicians: Cohort Study.JMIR diabetes · 2024Article
- Use of the patient portal among older adults with diagnosed dementia and their care partners.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Observational
- Co-Designing an Initiative to Increase Shared Access to Older Adults' Patient Portals: Stakeholder Engagement.Journal of medical Internet research · 2023Article
- Sharing Health Care Wishes in Primary Care (SHARE) among older adults with possible cognitive impairment in primary care: Study protocol for a randomized controlled trial.Contemporary clinical trials · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo describe the characteristics and online practices of patients and "care partners" who share explicit access to a patient portal account at a large integrated health system that implemented shared access functionality in 2003. MATERIALS AND
methodsSurvey of 323 patients and 389 care partners at Geisinger Health System with linked information regarding access and use of patient portal functionality.
resultsFew (0.4%) registered adult patient portal users shared access to their account. Patients varied in age (range: 18-102); more than half had a high school education or less (53.6%). Patient motivations for sharing access included: to help manage care (41.9%), for emergency reasons (29.7%), lack of technology experience (18.4%), or care partner request (10.0%). Care partners were parents (39.8%), adult children (27.9%), spouses (26.2%), and other relatives (6.1%). Patients were more likely than care partners to have inadequate health literacy (54.8% versus 8.8%, P < .001) and less confident in their ability to manage their care (53.0% versus 88.1%; P < .001). Care partners were more likely than patients to perform health management activities electronically (95.5% versus 48.4%; P < .001), access the patient portal (89.2% versus 30.3%; P < .001), and use patient portal functionality such as secure messaging (39.6% versus 13.9%; P < .001). Care partners used their own credentials (89.1%) and patient credentials (23.3%) to access the patient portal. DISCUSSION AND
conclusionShared access is an underused strategy that may bridge patients' health literacy deficits and lack of technology experience and that helps but does not fully resolve concerns regarding patient and care partner identity credentials.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.