ArticleJMIR human factors2015
Participatory Research as One Piece of the Puzzle: A Systematic Review of Consumer Involvement in Design of Technology-Based Youth Mental Health and Well-Being Interventions.
Article in JMIR human factors, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 80 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
80 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Evaluation of research co-design in health: a systematic overview of reviews and development of a framework.Implementation science : IS · 2024Pooled it
- Involvement of children and young people in the conduct of health research: A rapid umbrella review.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- A mixed-methods systematic review of suicide prevention interventions involving multisectoral collaborations.Health research policy and systems · 2022Pooled it
- Communication Technology Use by Caregivers of Adolescents With Mental Health Issues: Systematic Review.JMIR mHealth and uHealth · 2020Pooled it
- E-Health interventions for anxiety and depression in children and adolescents with long-term physical conditions.The Cochrane database of systematic reviews · 2018Pooled it
- Effects of a Mobile and Web App (Thought Spot) on Mental Health Help-Seeking Among College and University Students: Randomized Controlled Trial.Journal of medical Internet research · 2020Trial
- Co-Designing a Family e-Hub: A Systemic, Relational, Digital Mental Health Resource.Journal of marital and family therapy · 2026Article
- Early Deployment of an Integrated Digital Platform (shamiriOS) for Scalable Youth Mental Health Service Delivery in Kenya: Development and Usability Study.JMIR human factors · 2026Article
- Engagement of people with lived experience in the design and development of digital mental health interventions: A scoping review of engagement characteristics and impacts.Internet interventions · 2026Review
- Adolescents as co-designers: adapting human-centered design to develop school-based mental health strategies in northern Ghana.BMC public health · 2025Article
- A Design Thinking Approach for Transnational Adaptation of 2 Mobile Mental Health Apps: Tutorial for Researchers and Practitioners.Journal of medical Internet research · 2025Article
- The use of co-design with young people for digital mental health support development: A systematic review.Internet interventions · 2025Review
- Co-creating mental health promotion and prevention interventions with groups in vulnerable situations in Europe: a mixed-methods study protocol for co-creation implementation and participatory evaluation.Health research policy and systems · 2025Article
- Participatory Intervention Development of a Peer-Guided Self-Help App for Anxiety Disorders: Mixed Methods Study.JMIR formative research · 2025Article
- Policy implications of the 2020-22 Australian study of mental health and wellbeing.The Australian and New Zealand journal of psychiatry · 2025Article
- Co-designing an online educational resource to help adolescents improve their digital health literacy.BMC public health · 2025Article
- Youth partner engagement in the development of an integrated care pathway for the treatment of adolescents with depression.Journal of the Canadian Academy of Child and Adolescent Psychiatry = Journal de l'Academie canadienne de psychiatrie de l'enfant et de l'adolescent · 2025Article
- Rethinking 2S/LGBTQI+ food security with co-design: a study protocol.Frontiers in public health · 2025Article
- Supporting mental health of medical students: Needs and demands concerning an e-mental health application within medical education.GMS journal for medical education · 2025Article
- An umbrella review on how digital health intervention co-design is conducted and described.NPJ digital medicine · 2024Article
20 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite the potential of technology-based mental health interventions for young people, limited uptake and/or adherence is a significant challenge. It is thought that involving young people in the development and delivery of services designed for them leads to better engagement. Further research is required to understand the role of participatory approaches in design of technology-based mental health and well-being interventions for youth.
objectiveTo investigate consumer involvement processes and associated outcomes from studies using participatory methods in development of technology-based mental health and well-being interventions for youth.
methodsFifteen electronic databases, using both resource-specific subject headings and text words, were searched describing 2 broad concepts-participatory research and mental health/illness. Grey literature was accessed via Google Advanced search, and relevant conference Web sites and reference lists were also searched. A first screening of titles/abstracts eliminated irrelevant citations and documents. The remaining citations were screened by a second reviewer. Full text articles were double screened. All projects employing participatory research processes in development and/or design of (ICT/digital) technology-based youth mental health and well-being interventions were included. No date restrictions were applied; English language only. Data on consumer involvement, research and design process, and outcomes were extracted via framework analysis.
resultsA total of 6210 studies were reviewed, 38 full articles retrieved, and 17 included in this study. It was found that consumer participation was predominantly consultative and consumerist in nature and involved design specification and intervention development, and usability/pilot testing. Sustainable participation was difficult to achieve. Projects reported clear dichotomies around designer/researcher and consumer assumptions of effective and acceptable interventions. It was not possible to determine the impact of participatory research on intervention effectiveness due to lack of outcome data. Planning for or having pre-existing implementation sites assisted implementation. The review also revealed a lack of theory-based design and process evaluation.
conclusionsConsumer consultations helped shape intervention design. However, with little evidence of outcomes and a lack of implementation following piloting, the value of participatory research remains unclear.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.