ArticleHealth expectations : an international journal of public participation in health care and health policy2017
Involving self-help groups in health-care institutions: the patients' contribution to and their view of 'self-help friendliness' as an approach to implement quality criteria of sustainable co-operation.
Article in Health expectations : an international journal of public participation in health care and health policy, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Self-Help-Friendly Hospitals: Integrating Self-Help Groups as a Complementary Service in Healthcare.International journal of environmental research and public health · 2026Article
- Assessing Self-Help Orientation Among German Rehabilitation Clinics: Website Content Analysis.Journal of medical Internet research · 2025Article
- The Adoption of a "Diseased Identity" in Traditional 12-Step Groups: Exploring the Implications of These Processes for Individuals and Practitioners in Health and Social Care Services.International journal of environmental research and public health · 2024Article
- Article
- Prospective analysis of the attendance behaviour of the participants of a facilitated support group for patients after allogeneic hematopoietic cell transplantation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Self-help friendliness in cancer care: A cross-sectional study among self-help group leaders in Germany.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Collective empowerment of an online patient community: conceptualizing process dynamics using a multi-method qualitative approach.BMC health services research · 2021Article
- Measuring Development of Self-Help Organizations for Patients with Chronic Health Conditions in Hong Kong: Development and Validation of the Self-Help Organization Development Scale (SHODS).International journal of environmental research and public health · 2021Article
- Health information needs assessment among self-help groups and willingness for involvement in health promotion in a rural setting in Puducherry: A mixed-method study.Journal of education and health promotion · 2019Article
- Involving Latina/o parents in patient-centered outcomes research: Contributions to research study design, implementation and outcomes.Health expectations : an international journal of public participation in health care and health policy · 2017Article
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3 authors.
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Abstract
backgroundThe importance of patient participation and involvement is now widely acknowledged; in the past, few systematic health-care institution policies existed to establish sustainable co-operation. In 2004, in Germany, the initiative 'Self-Help Friendliness (SHF) and Patient-Centeredness in Health Care' was launched to establish and implement quality criteria related to collaboration with patient groups.
objectivesThe objective of this study was to describe (i) how patients were involved in the development of SHF by summarizing a number of studies and (ii) a new survey on the importance and feasibility of SHF. SETTING AND
participantsIn a series of participative studies, SHF was shaped, tested and implemented in 40 health-care institutions in Germany. Representatives from 157 self-help groups (SHGs), 50 self-help organizations and 17 self-help clearing houses were actively involved. The second objective was reached through a survey of 74 of the 115 member associations of the biggest self-help umbrella organization at federal level (response rate: 64 %).
resultsPatient involvement included the following: identification of the needs and wishes of SHGs regarding co-operation, their involvement in the definition of quality criteria of co-operation, having a crucial role during the implementation of SHF and accrediting health-care institutions as self-help friendly. The ten criteria in total were positively valued and perceived as moderately practicable.
conclusionsThrough the intensive involvement of self-help representatives, it was feasible to develop SHF as a systematic approach to closer collaboration of professionals and SHGs. Some challenges have to be taken into account involving patients and the limitations of our empirical study.
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