ArticleBMJ open2016
What is important for you? A qualitative interview study of living with diabetes and experiences of diabetes care to establish a basis for a tailored Patient-Reported Outcome Measure for the Swedish National Diabetes Register.
Article in BMJ open, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04592263 (Patient Centered Care in Diabetes in Ecuador), which is not on this map. Cited by 45 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Patient Centered Care in Diabetes in Ecuador: Mixed-methods Study.
Who cites it
45 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Patient-reported outcome measures for assessing health-related quality of life in people with type 2 diabetes: A systematic review.Reviews in endocrine & metabolic disorders · 2022Pooled it
- Factors associated with patient empowerment in Spanish adults with type 2 diabetes: A cross-sectional analysis.Health expectations : an international journal of public participation in health care and health policy · 2022Trial
- Experiences of contacts with diabetes care professionals among people with type 2 diabetes in an urban Swedish setting.Scandinavian journal of primary health care · 2026Article
- Experiences of Family Members Supporting Adults With Type 1 Diabetes: A Qualitative Study.The science of diabetes self-management and care · 2026Article
- Do Patient-Important Outcomes Differ by Care Setting? Findings from Semi-Structured Interviews with Individuals with Diabetes.Healthcare (Basel, Switzerland) · 2025Article
- Lifelong Learning With Type 1 Diabetes: The Lived Experiences of Adults Diagnosed in Younger Years.The science of diabetes self-management and care · 2025Article
- Assessment of self-efficacy, quality of life, and well-being of patients with diabetes mellitus in Alqunfudah, Saudi Arabia.BMC endocrine disorders · 2025Article
- The role of social role strain, psychological resources and perceiving diabetes as a priority with self-care in women with type 2 diabetes mellitus.BMC women's health · 2025Article
- Article
- Investigating Digital Patient-Reported Outcome Measures in Patient-Centered Diabetes Specialist Outpatient Care (DigiDiaS): Protocol for a Multimethod Prospective Observational Study.JMIR research protocols · 2024Article
- Advancing Diabetes Self-Management: A Novel Smartphone Application Featuring a Scoring Algorithm for Tailored User Engagement.International journal of preventive medicine · 2024Article
- Quality Measurement in Shanghai From a Global Perspective; A Response to Recent Commentaries.International journal of health policy and management · 2024Article
- Living with Type 1 Diabetes as Experienced by Adults with Prolonged Elevated HbA1c: A Qualitative Study.Diabetes therapy : research, treatment and education of diabetes and related disorders · 2023Article
- Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review.Diabetologia · 2023Review
- Analyzing User Engagement Within a Patient-Reported Outcomes Texting Tool for Diabetes Management: Engagement Phenotype Study.JMIR diabetes · 2022Article
- Development and validation in Ecuador of the EPD Questionnaire, a diabetes-specific patient-reported experience and outcome measure: A mixed-methods study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Implementing the Digital Diabetes Questionnaire as a Clinical Tool in Routine Diabetes Care: Focus Group Discussions With Patients and Health Care Professionals.JMIR diabetes · 2022Article
- Article
- Article
- Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments.The patient · 2021Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThere is a growing emphasis on the perspective of individuals living with diabetes and the need for a more person-centred diabetes care. At present, the Swedish National Diabetes Register (NDR) lacks patient-reported outcome measures (PROMs) based on the perspective of the patient. As a basis for a new PROM, the aim of this study was to describe important aspects in life for adult individuals with diabetes.
designSemistructured qualitative interviews analysed using content analysis.
settingHospital-based outpatient clinics and primary healthcare clinics in Sweden.
participants29 adults with type 1 diabetes mellitus (DM) (n=15) and type 2 DM (n=14). INCLUSION CRITERIA: Swedish adults (≥ 18 years) living with type 1 DM or type 2 DM (duration ≥ 5 years) able to describe their situation in Swedish. Purposive sampling generated heterogeneous characteristics.
resultsTo live a good life with diabetes is demanding for the individual, but experienced barriers can be eased by support from others in the personal sphere, and by professional support from diabetes care. Diabetes care was a crucial resource to nurture the individual's ability and knowledge to manage diabetes, and to facilitate life with diabetes by supplying support, guidance, medical treatment and technical devices tailored to individual needs. The analysis resulted in the overarching theme 'To live a good life with diabetes' constituting the two main categories 'How I feel and how things are going with my diabetes' and 'Support from diabetes care in managing diabetes' including five different categories.
conclusionsCommon aspects were identified including the experience of living with diabetes and support from diabetes care. These will be used to establish a basis for a tailored PROM for the NDR.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.