ArticleJournal of cystic fibrosis : official journal of the European Cystic Fibrosis Society2016
Disease disclosure in individuals with cystic fibrosis: Association with psychosocial and health outcomes.
Article in Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Appetite stimulants for people with cystic fibrosis.The Cochrane database of systematic reviews · 2022Pooled it
- The patient's experience of primary ciliary dyskinesia: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Pooled it
- The Impact of Cystic Fibrosis-Related Diabetes on Barriers to Self-Management.Pediatric pulmonology · 2026Article
- Psychosocial Aspects of Cystic Fibrosis: A Mixed-Methods Systematic Review.Healthcare (Basel, Switzerland) · 2026Review
- Concealment of Parkinsons disease prevalence and impact on health and quality of life.Scientific reports · 2025Article
- Psychological interventions for improving adherence to inhaled therapies in people with cystic fibrosis.The Cochrane database of systematic reviews · 2023Review
- Article
- Is mHealth a useful therapy for improving physical or emotional health in adolescents with cystic fibrosis? A systematic review.Current psychology (New Brunswick, N.J.) · 2021Article
- Identifying Factors that Facilitate Treatment Adherence in Cystic Fibrosis: Qualitative Analyses of Interviews with Parents and Adolescents.Journal of clinical psychology in medical settings · 2019Article
- Psychological predictors of nutritional adherence in adolescents with cystic fibrosis.Clinical nutrition ESPEN · 2019Article
- Identifying and Integrating Parent Priorities for Psychosocial Support Services in a Pediatric Cystic Fibrosis Clinic.Journal of clinical psychology in medical settings · 2019Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundThis study aimed to quantify cystic fibrosis (CF) disclosure and examine associations between disclosure and psychosocial and health outcomes.
methodsParticipants completed measures assessing disease disclosure and psychosocial outcomes. Data from chart reviews and pharmacy records were obtained.
resultsParticipants (N=128; ages 16-63) were more likely to disclose to romantic partners (97%) and close friends (94%) than to casual friends (79%), bosses (71%), or co-workers (53%). Participants reported more comfort discussing CF with and doing treatments in front of romantic partners and close friends than other groups. Disclosure was associated with higher social support, social functioning, and medication adherence self-efficacy. Lower lung-function was associated with disclosure to bosses and co-workers.
conclusionsClinicians should consider discussing disclosure with patients, as limited disclosure may have a negative impact on psychosocial outcomes.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.