SynthesisQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016
Quality of life of individuals born preterm: a systematic review of assessment approaches.
Synthesis in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.
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Who cites it
20 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Preference-Based Health-Related Quality of Life Outcomes Associated with Preterm Birth: A Systematic Review and Meta-analysis.PharmacoEconomics · 2020Pooled it
- Bibliometric analysis of reviews of outcomes for adults with a complex perinatal history.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Health-related quality of life at 5 years of age for children born very preterm with congenital anomalies: a multi-national cohort study.Pediatric research · 2025Article
- Parent-Reported Health-Related Quality of Life (HRQoL) of NICU Graduates in Their First Year: A Prospective Cohort Study.International journal of environmental research and public health · 2025Article
- Health-related quality of life in children with bronchopulmonary dysplasia: examining agreement between child self-report and parent proxy.European journal of pediatrics · 2024Article
- Health-related quality of life in children born preterm at school age: the mediating role of social support and maternal stress.Frontiers in psychology · 2024Article
- Health-Related Qualities of Life in School-Aged Children with Bronchopulmonary Dysplasia.The Journal of pediatrics · 2023Observational
- Health-related quality of life of children born very preterm: a multinational European cohort study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- Quality of Life at a 10-Year Follow-Up of Children Born Preterm with Post-Hemorrhagic Ventricular Dilatation: A Cohort Study.Neonatology · 2023Article
- Article
- Development of health-related quality of life and subjective health complaints in adults born extremely preterm: a longitudinal cohort study.Health and quality of life outcomes · 2022Article
- Effects of Lipopolysaccharide on Oligodendrocyte Differentiation at Different Developmental Stages: an In Vitro Study.Journal of Korean medical science · 2021Article
- Respiratory outcomes of "new" bronchopulmonary dysplasia in adolescents: A multicenter study.Pediatric pulmonology · 2021Article
- Mothers' experiences of parenting and everyday life of children born at 23 weeks of gestation - a qualitative descriptive study.BMC pediatrics · 2021Article
- Health-Related Quality of Life at 2.5 years Corrected Age Among Neonates ≤1250 g Birth Weight.Indian journal of pediatrics · 2020Article
- Specific cognitive correlates of the quality of life of extremely preterm school-aged children without major neurodevelopmental disability.Pediatric research · 2020Article
- Article
- Quality of life among parents of preterm infants: a scoping review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2018Article
- Neonatal risk mortality scores as predictors for health-related quality of life of infants treated in NICU: a prospective cross-sectional study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Article
- Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo review the existing literature regarding factors associated with quality of life (QoL) of individuals who were born preterm. The review focuses on assessment approaches and information sources.
methodsA systematic review of empirical studies published in PubMed, PsycARTICLES, PsycINFO, LILACS, and SciELO databases between 2007 and 2015. Search terms were chosen that relate preterm birth to QoL.
resultsTwenty-two articles were included. Of these, ten investigated QoL in children, six investigated adolescents, and six investigated adults. All studies used generic instruments to assess QoL. There was a high rate of parental report to assess QoL in studies of children. Adolescent and adult studies most often assessed QoL through self-report. Parents of children who were born preterm reported worse QoL for their children compared with parents of children born full term. Teenagers and adults who were born preterm self-reported more positive outcomes in their QoL. The main risk factors associated with worse QoL in children who were born preterm were congenital malformations, mechanical ventilation during the neonatal phase, cognitive impairments, behavioral problems, physical disabilities, low family income, and black race.
conclusionsAgreement between parents and children about QoL in preterm individuals was lower in younger age groups compared with older age groups. The differences in QoL throughout the different age groups may have arisen because of developmental changes or differences in the source of information used (i.e., parent report or self-report). We recommend that QoL assessments in children born preterm should consider both parent report and self-report.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.