Evidence map›Paper›PMID 26991807›Full record

ReviewCancer2016

Caring for caregivers and patients: Research and clinical priorities for informal cancer caregiving.

Erin E Kent, Julia H Rowland, Laurel Northouse, Kristin Litzelman, Wen-Ying Sylvia Chou, Nonniekaye Shelburne, Catherine Timura, Ann O'Mara, Karen Huss

2 registry-linked trialsAbstract readReview
In one paragraph

Review in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 314 papers, 6 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
314citing papers in PubMed, 6 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03746314 completednot on this mapstarted 2018, after this paper: background citation

Supportive Care Service Availability for Cancer Caregivers in Community Oncology Practices

TypeobservationalSponsorWake Forest University Health SciencesRan2018 to 2020Enrolled910ConditionsSupportive Care
NCT07450924 nacompletednot on this mapstarted 2025, after this paper: background citation

Examination of the Effect of Mandala Coloring Activity Applied to Caregivers in the Palliative Care Clinic Along With Benson Relaxation Exercise on Stress, Anxiety and Mental Well-Being

TypeinterventionalSponsorKaradeniz Technical UniversityRan2025 to 2025Enrolled68ConditionsBenson Exercise, Mandala Coloring, Informal Palliative CaregiverArmsmandala coloring activity, Benson relaxation exercises
3 · Its place in the literature

Who cites it

314 citing papers in PubMed, 6 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Guideline
  4. Pooled it
  5. Pooled it
  6. Systematic review of illness uncertainty management interventions for cancer patients and their family caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Pooled it
  7. Trial
  8. Trial
  9. Trial
  10. A sequential multiple assignment randomized trial of symptom management for cancer survivors during treatment and their informal caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Trial
  11. A proactive financial navigation intervention in patients with newly diagnosed gastric and gastroesophageal junction adenocarcinoma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024
    Trial
  12. Trial
  13. Trial
  14. Resilience, preparedness, and distress among family caregivers of patients with advanced cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Trial
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Considering the caregiver in early-phase clinical trials: a review of trial protocols and consent forms.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Review

254 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Erin E KentDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland.
Julia H RowlandDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland.
Laurel NorthouseSchool of Nursing, University of Michigan, Ann Arbor, Michigan.
Kristin LitzelmanDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland.
Wen-Ying Sylvia ChouDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland.
Nonniekaye ShelburneDivision of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, Maryland.
Catherine TimuraDivision of Science Policy and Public Liaison, National Institute of Nursing Research, Bethesda, Maryland.
Ann O'MaraDivision of Cancer Prevention, National Cancer Institute, Bethesda, Maryland.
Karen HussDivision of Extramural Science Programs, Office of Extramural Programs, National Institute of Nursing Research, Bethesda, Maryland.

Funding

Intramural NIH HHS Z99 CA999999
6 · The paper itself

Abstract

Informal/family caregivers are a fundamental source of care for cancer patients in the United States, yet the population of caregivers and their tasks, psychosocial needs, and health outcomes are not well understood. Changes in the nature of cancer care and its delivery, along with the growing population of survivors and their caregivers, warrant increased attention to the roles and demands of caregiving. This article reviews current evidence presented at a 2-day meeting examining the state of the science of informal cancer caregiving that was convened by the National Cancer Institute and the National Institute of Nursing Research. The meeting sought to define who is an informal cancer caregiver, summarize the state of the science in informal cancer caregiving, and describe both the kinds of interventions developed to address caregiving challenges and the various outcomes used to evaluate their impact. This article offers recommendations for moving science forward in 4 areas: 1) improving the estimation of the prevalence and burden of informal cancer caregiving; 2) advancing the development of interventions designed to improve outcomes for cancer patients, caregivers, and patient-caregiver dyads; 3) generating and testing strategies for integrating caregivers into formal health care settings; and 4) promoting the use of technology to support informal cancer caregivers. Cancer 2016;122:1987-95. © 2016 American Cancer Society.

Indexed as

CaregiversEvidence-Based MedicineHumansNeoplasmsPsychosocial Support SystemsSocial SupportSurvivorsUnited Statesbehavioral sciencecancerfamily caregiversneoplasmssupportive caretechnology

Identifiers

PMID26991807
PMCPMC5597246

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.