ArticlePsycho-oncology2017
Promoting improved family caregiver health literacy: evaluation of caregiver communication resources.
Article in Psycho-oncology, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 3 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 3 syntheses or guidelines pooled it, 47 citations in OpenAlex.
- Factors associated with self-care behavior in patients with chronic kidney disease: a systematic review.BMC nephrology · 2025Pooled it
- Supporting communication of visit information to informal caregivers: A systematic review.PloS one · 2021Pooled it
- Caring for the caregiver: a systematic review characterising the experience of caregivers of older adults with advanced cancers.ESMO open · 2020Pooled it
- Development of a health literacy framework for primary health care service users in Qatar: a mixed methods study.BMC health services research · 2026Article
- Latent profile analysis and influencing factors of health literacy among family caregivers of cancer patients.Frontiers in public health · 2026Article
- The mediating roles of intimate relationships and constructive communication in the association between self-disclosure and benefit finding among patients with colorectal cancer.Asia-Pacific journal of oncology nursing · 2025Article
- Family Caregiver Perspectives on Digital Methods to Measure Stress: Qualitative Descriptive Study.Journal of medical Internet research · 2025Article
- Prevalence and influencing factors of the dyadic psychological stress among patients with lung cancer and their family caregivers: a cross-sectional study.BMC nursing · 2025Article
- Article
- Optimizing health literacy to facilitate reproductive health decision-making in adolescent and young adults with cancer.Pediatric blood & cancer · 2023Article
- Informal Caregivers' Health Literacy in Lisbon, Portugal: A Profile for Health Promotion Prioritization.Geriatrics (Basel, Switzerland) · 2022Article
- A modified Delphi study to identify strategies to promote health literacy in parents of children with cancer.Journal of education and health promotion · 2022Article
- Is the health literacy of informal caregivers associated with the psychological outcomes of breast cancer survivors?Journal of cancer survivorship : research and practice · 2021Article
- Caregiver Communication About Cancer: Development of a mhealth resource to support family caregiver communication burden.Psycho-oncology · 2019Article
- Information, communication, and online tool needs of Hispanic family caregivers of individuals with Alzheimer's disease and related dementias.Informatics for health & social care · 2019Article
- Pilot Study of a Communication Coaching Telephone Intervention for Lung Cancer Caregivers.Cancer nursingArticle
Corrections and comments
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Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesFamily caregivers of cancer patients have a vital role in facilitating and sharing information about cancer, revealing a need to develop caregiver health literacy skills to support caregiver communication. The goal of this study was to investigate caregiver print materials and develop and assess a new caregiver communication resource titled A Communication Guide for Caregivers
methodsUsing a model of six domains of caregiver health literacy skills, print cancer education materials were collected and evaluated for caregiver communication support. A new caregiver communication resource was also developed and assessed by caregivers and healthcare providers. Caregivers reviewed content and assessed utility, relatability, and reading quality. Healthcare providers also assessed whether the material would be understandable and usable for cancer caregivers.
resultsOnly three of the 28 print materials evaluated were written at the recommended sixth grade reading level and only five addressed all six caregiver health literacy skills. Readability scores for A Communication Guide for Caregivers
conclusionsExisting print-based caregiver education materials do not address caregivers' health literacy skill needs and are aimed at a highly literate caregiving population. A Communication Guide for Caregivers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.