ArticleJournal of the American Medical Informatics Association : JAMIA2016
Sociocultural variation in attitudes toward use of genetic information and participation in genetic research by race in the United States: implications for precision medicine.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The role of race and ethnicity in views toward and participation in genetic studies and precision medicine research in the United States: A systematic review of qualitative and quantitative studies.Molecular genetics & genomic medicine · 2020Pooled it
- Mapping of Crowdsourcing in Health: Systematic Review.Journal of medical Internet research · 2018Pooled it
- Patient preferences for massively parallel sequencing genetic testing of colorectal cancer risk: a discrete choice experiment.European journal of human genetics : EJHG · 2018Trial
- A model for supporting biomedical and public health researcher use of publicly available All of Us data at Historically Black Colleges and Universities.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- The Add Health Parent Study: A Biosocial Resource for the Study of Multigenerational Racial/Ethnic Disparities in Alzheimer's Disease and Alzheimer's Disease-Related Dementias.Journal of Alzheimer's disease : JAD · 2024Article
- Transgender identity genetic research: Attitudes, opinions & beliefs among members of the transgender and gender diverse communities.International journal of transgender health · 2024Article
- "How is it going to help?": Exploring Black breast cancer patients' questions about biomarker testing to predict chemotherapy-induced peripheral neuropathy.PEC innovation · 2023Article
- Knowledge and Attitudes About Genetic Testing Among Black and White Women with Breast Cancer.Journal of racial and ethnic health disparities · 2021Article
- Use of a Qualitative Story Deck to Create Scenarios and Uncover Factors Associated with African American Participation in Genomics Research.Field methods · 2021Article
- Predictors of genetic beliefs toward cancer risk perceptions among adults in the United States: Implications for prevention or early detection.Journal of genetic counseling · 2020Article
- Article
- Attitudes Toward Genetics and Genetic Testing Among Participants in the Jackson and Framingham Heart Studies.Journal of empirical research on human research ethics : JERHRE · 2019Article
- Racial and Ethnic Disparities in Treatment Outcomes of Patients with Ruptured or Unruptured Intracranial Aneurysms.Journal of racial and ethnic health disparities · 2019Article
- A Review of African Americans' Beliefs and Attitudes About Genomic Studies: Opportunities for Message Design.Frontiers in genetics · 2019Review
- Views of the importance of psychiatric genetic research by potential volunteers from stakeholder groups.Journal of psychiatric research · 2018Article
- Genes, Race, and Causation: US Public Perspectives About Racial Difference.Race and social problems · 2018Article
- Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research.The American journal of bioethics : AJOB · 2018Article
- Parental preferences toward genomic sequencing for non-medically actionable conditions in children: a discrete-choice experiment.Genetics in medicine : official journal of the American College of Medical Genetics · 2018Article
- Precision medicine informatics.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Participation in Genetic Research: Amazon's Mechanical Turk Workforce in the United States and India.Public health genomics · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
background"Precision medicine" (PM) requires researchers to identify actionable genetic risks and for clinicians to interpret genetic testing results to patients. Whether PM will equally benefit all populations or exacerbate existing disparities is uncertain.
methodsWe ascertained attitudes toward genetic testing and genetic research by race in the United States using the online Amazon mTurk US workforce (n = 403 White; n = 56 African American (AA)). Generalized linear models were used to test differences in beliefs and preferences by race, adjusting for sociodemographics and prior genetic experience.
resultsAA were less likely than White to believe that genetic tests should be promoted or made available. Further, AA were less likely to want genetic testing results or to participate in genetic research.
conclusionsImportant dimensions that underlay PM are not universally accepted by all populations. Without clear attention to concerns, AA communities may not equally benefit from the rapidly-emerging trend in PM-centered research and clinical practice.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.