ArticleJournal of the American Medical Informatics Association : JAMIA2016
A patient-centered system in a provider-centered world: challenges of incorporating post-discharge wound data into practice.
Article in Journal of the American Medical Informatics Association : JAMIA, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 33 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
33 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Co-Designing Remote Patient Monitoring Technologies for Inpatients: Systematic Review.Journal of medical Internet research · 2024Pooled it
- How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review.Health informatics journal · 2020Pooled it
- A Systematic Review of Patient-Facing Visualizations of Personal Health Data.Applied clinical informatics · 2019Pooled it
- Converging and diverging needs between patients and providers who are collecting and using patient-generated health data: an integrative review.Journal of the American Medical Informatics Association : JAMIA · 2018Pooled it
- Implementation of digital remote postoperative monitoring in routine practice: a qualitative study of barriers and facilitators.BMC medical informatics and decision making · 2024Trial
- Detecting Redundant Health Survey Questions by Using Language-Agnostic Bidirectional Encoder Representations From Transformers Sentence Embedding: Algorithm Development Study.JMIR medical informatics · 2025Article
- Attitudes of healthcare professionals and researchers toward wearable and app derived patient generated health data.NPJ digital medicine · 2025Article
- New Horizons for Consumer-Mediated Health Information Exchange.Yearbook of medical informatics · 2024Review
- Optimizing an Outpatient mHealth Intervention for Children with Burns: A Convergent Mixed-Methods Study.Journal of burn care & research : official publication of the American Burn Association · 2023Article
- Data-Driven Technologies as Enablers for Value Creation in the Prevention of Surgical Site Infections: a Systematic Review.Journal of healthcare informatics research · 2023Review
- Articulation of postsurgical patient discharges: coordinating care transitions from hospital to home.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- The Impact of Perioperative Remote Patient Monitoring on Clinical Staff Workflows: Scoping Review.JMIR human factors · 2022Article
- Patient and Provider Preferences for Monitoring Surgical Wounds Using an mHealth App: A Formative Qualitative Analysis.Surgical infections · 2022Article
- A scoping review of qualitative research in JAMIA: past contributions and opportunities for future work.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Development of Social Support Networks by Patients With Depression Through Online Health Communities: Social Network Analysis.JMIR medical informatics · 2021Article
- Patient involvement in surgical wound care research: A scoping review.International wound journal · 2020Article
- 'We are very individual': anticipated effects on stroke survivors of using their person-generated health data.BMJ health & care informatics · 2020Article
- An Image-Based Mobile Health App for Postdrainage Monitoring: Usability Study.Journal of medical Internet research · 2020Article
- Enabling Better Use of Person-Generated Health Data in Stroke Rehabilitation Systems: Systematic Development of Design Heuristics.Journal of medical Internet research · 2020Article
- Patient-Reported Outcome Measures of Utilizing Person-Generated Health Data in the Case of Simulated Stroke Rehabilitation: Development Method.JMIR research protocols · 2020Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectiveThe proposed Meaningful Use Stage 3 recommendations require healthcare providers to accept patient-generated health data (PGHD) by 2017. Yet, we know little about the tensions that arise in supporting the needs of both patients and providers in this context. We sought to examine these tensions when designing a novel, patient-centered technology - mobile Post-Operative Wound Evaluator (mPOWEr) - that uses PGHD for post-discharge surgical wound monitoring. MATERIALS AND
methodsAs part of the iterative design process of mPOWEr, we conducted semistructured interviews and think-aloud sessions using mockups with surgical patients and providers. We asked participants how mPOWEr could enhance the current post-discharge process for surgical patients, then used grounded theory to develop themes related to conflicts and agreements between patients and providers.
resultsWe identified four areas of agreement: providing contextual metadata, accessible and actionable data presentation, building on existing sociotechnical systems, and process transparency. We identified six areas of conflict, with patients preferring: more flexibility in data input, frequent data transfer, text-based communication, patient input in provider response prioritization, timely and reliable provider responses, and definitive diagnoses. DISCUSSION: We present design implications and potential solutions to the identified conflicts for each theme, illustrated using our work on mPOWEr. Our experience highlights the importance of bringing a variety of stakeholders, including patients, into the design process for PGHD applications.
conclusionWe have identified critical barriers to integrating PGHD into clinical care and describe design implications to help address these barriers. Our work informs future efforts to ensure the smooth integration of essential PGHD into clinical practice.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.