ArticleGlobal health action2016
Knowledge and experiences of Chagas disease in Bolivian women living in Spain: a qualitative study.
Article in Global health action, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 41 citations in OpenAlex.
- The health-related quality of life in patients with Chagas disease: the state of the art.Revista da Sociedade Brasileira de Medicina Tropical · 2022Pooled it
- Screening forEuro surveillance : bulletin Europeen sur les maladies transmissibles = European communicable disease bulletin · 2020Pooled it
- Knowledge, Attitudes, and Practices toward Chagas Disease: A Cross-Sectional Survey of Bolivians in the Gran Chaco and Latin American Migrants in London.The American journal of tropical medicine and hygiene · 2025Article
- Apoptosis: A Key Process ThatJournal of parasitology research · 2025Review
- Article
- Health literacy & Chagas disease knowledge: A cross-sectional study in Southern Loja Province, Ecuador.PEC innovation · 2024Article
- Chagas disease is a low health priority among high-risk Latin American migrants in Geneva, a qualitative study.Journal of migration and health · 2024Article
- Diagnostic pathways of Chagas disease in Spain: a qualitative study.BMC public health · 2023Article
- Tolerance and Adherence of Patients with Chronic Chagas Disease Treated with Benznidazole.Revista da Sociedade Brasileira de Medicina Tropical · 2023Article
- Mapping health behaviour related to Chagas diagnosis in a non-endemic country: Application of Andersen's Behavioural Model.PloS one · 2022Article
- Community-based screening of Chagas disease among Latin American migrants in a non-endemic country: an observational study.Infectious diseases of poverty · 2021Observational
- Perceptions among diabetic patients in the ultra-orthodox Jewish community regarding medication adherence: a qualitative study.BMC public health · 2021Article
- Key Chagas disease missing knowledge among at-risk population in Spain affecting diagnosis and treatment.Infectious diseases of poverty · 2021Article
- Chagas disease screening in pregnant Latin American women: Adherence to a systematic screening protocol in a non-endemic country.PLoS neglected tropical diseases · 2021Article
- Seroprevalence of Trypanosoma cruzi in pregnant women in Midwest Brazil: an evaluation of congenital transmission.Revista do Instituto de Medicina Tropical de Sao Paulo · 2021Article
- Challenges in the care of patients with Chagas disease in the Brazilian public health system: A qualitative study with primary health care doctors.PLoS neglected tropical diseases · 2020Article
- "We have already heard that the treatment doesn't do anything, so why should we take it?": A mixed method perspective on Chagas disease knowledge, attitudes, prevention, and treatment behaviour in the Bolivian Chaco.PLoS neglected tropical diseases · 2020Article
- Article
- Qualitative evidence synthesis of values and preferences to inform infant feeding in the context of non-HIV transmission risk.PloS one · 2020Article
- Factors associated with Chagas screening among immigrants from an endemic country in Madrid, Spain.PloS one · 2020Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundIn Europe, Spain has the highest number of people with Chagas disease (CD). Bolivian migrants account for 81% of the reported cases. One of the priorities in controlling the disease is prevention of mother-to-child transmission. Despite under-diagnosis in Spain being estimated at 90%, there are currently few studies that explore the social and cultural dimensions of this disease.
objectiveThe aim of this study was to explore the knowledge and experiences of Bolivian women with CD, in order to generate a useful understanding for the design and implementation of public health initiatives.
designQualitative study based on semi-structured interviews, triangular groups, and field notes.
participantsFourteen Bolivian women with CD living in Madrid.
resultsThe participants were aware that the disease was transmitted through the vector, that it could be asymptomatic, and that it could also be associated with sudden death by heart failure. They opined that the treatment as such could not cure the disease but only slow it down. There was a sense of indifference along with a lack of understanding of the risk of contracting the disease. Participants who presented with symptoms, or those with relatives suffering from the disease, were concerned about fatalities, cardiac problems, and possible vertical transmission. There was also a fear of being rejected by others. The disease was described as something that affected a large number of people but only showed up in a few cases and that too after many years. There was a widespread assumption that it was better not to know because doing so, allows the disease to take hold.
conclusionsDisease risk perception was very low in Bolivian women living in Madrid. This factor, together with the fear of being screened, may be contributing to the current rate of under-diagnosis.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.