ArticleAMIA ... Annual Symposium proceedings. AMIA Symposium2015
Application of a Consumer Health Information Needs Taxonomy to Questions in Maternal-Fetal Care.
Article in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2015. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed.
- Automating the Classification of Complexity of Medical Decision-Making in Patient-Provider Messaging in a Patient Portal.The Journal of surgical research · 2020Article
- Common Consumer Health-Related Needs in the Pediatric Hospital Setting: Lessons from an Engagement Consultation Service.Applied clinical informatics · 2018Article
- Article
- A technology-based patient and family engagement consult service for the pediatric hospital setting.Journal of the American Medical Informatics Association : JAMIA · 2018Article
- Development of a Technology-Supported, Lay Peer-to-Peer Family Engagement Consultation Service in a Pediatric Hospital.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2018Article
- A comparison of rule-based and machine learning approaches for classifying patient portal messages.International journal of medical informatics · 2017Article
- Complexity of medical decision-making in care provided by surgeons through patient portals.The Journal of surgical research · 2017Article
- Use of the Multidimensional Health Locus of Control to Predict Information-Seeking Behaviors and Health-Related Needs in Pregnant Women and Caregivers.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2017Article
- Automated Classification of Consumer Health Information Needs in Patient Portal Messages.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2015Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Pregnancy is a time when expectant mothers may have numerous questions about their unborn children, especially when congenital anomalies are diagnosed prenatally. We sought to characterize information needs of pregnant women seen in the Vanderbilt Children's Hospital Fetal Center. Participants recorded questions from diagnosis through delivery. Questions were categorized by two researchers using a hierarchical taxonomy describing consumer health information needs. Consensus category assignments were made, and inter-rater reliability was measured with Cohen's Kappa. Sixteen participants reported 398 questions in 39 subcategories, of which the most common topics were prognosis (53 questions; 13.3%) and indications for intervention (31 questions; 7.8%). Inter-rater reliability of assignments showed moderate (κ=0.57) to substantial (κ=0.75) agreement for subcategories and primary categories, respectively. Pregnant women with prenatal diagnoses have diverse unmet information needs; a taxonomy of consumer health information needs may improve the ability to meet such needs through content and system design.
Indexed as
Identifiers
26958254PMC4765568What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.