Evidence map›Paper›PMID 26945026›Full record

ArticleArchives of disease in childhood2016

Health professionals' and managers' definitions of developmentally appropriate healthcare for young people: conceptual dimensions and embedded controversies.

Albert Farre, Victoria Wood, Janet E McDonagh, Jeremy R Parr, Debbie Reape, Tim Rapley, Transition Collaborative Group

Open access · bronzeAbstract readMulticenter Study
In one paragraph

Article in Archives of disease in childhood, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
31citing papers in PubMed, 2 pooled it
16.4field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

31 citing papers in PubMed, 2 syntheses or guidelines pooled it, 62 citations in OpenAlex.

  1. Pooled it
  2. Pooled it
  3. Article
  4. Article
  5. Review
  6. Stuck in transit: A qualitative study of the transitional care needs of young people with epilepsy and juvenile idiopathic arthritis.Journal of child health care : for professionals working with children in the hospital and community · 2023
    Article
  7. Article
  8. Article
  9. Shifting responsibilities: A qualitative study of how young people assume responsibility from their parents for self-management of their chronic kidney disease.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
  10. Article
  11. Review
  12. Article
  13. Article
  14. A framework for youth-friendly genetic counseling.Journal of community genetics · 2020
    Article
  15. Review
  16. Article
  17. Article
  18. Review
  19. Observational
  20. Making healthcare work for young people.Archives of disease in childhood · 2018
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 1 country.

Albert FarreInstitute of Applied Health Research, University of Birmingham, Birmingham, UK.
Victoria WoodInstitute of Health and Society, Newcastle University, Newcastle upon Tyne, UK.
Janet E McDonaghCentre for Musculoskeletal Research, University of Manchester, Manchester, UK.
Jeremy R ParrInstitute of Neuroscience, Newcastle University, Newcastle upon Tyne, UK.
Debbie ReapeNorthumbria Healthcare NHS Foundation Trust, Tyne and Wear, UK.
Tim RapleyInstitute of Health and Society, Newcastle University, Newcastle upon Tyne, UK.
Transition Collaborative Group
Newcastle University · GBNorthumbria Healthcare NHS Foundation Trust · GBUniversity of Birmingham · GBUniversity of Manchester · GB

Funding

Department of Health RP-PG-0610-10112
6 · The paper itself

Abstract

objectivesWe aimed to (i) explore how health professionals and managers who work with young people seek to define developmentally appropriate healthcare (DAH), (ii) identify the range of conceptual dimensions present in their definitions and (iii) explore the controversies embedded in their characterisations of DAH.

methodsA qualitative multisite ethnographic study was conducted across three hospitals in England. We undertook face-to-face semi-structured interviews with health professionals and managers; and non-participant observation in clinics, wards and meetings. Anonymised field notes and interview transcripts were analysed using thematic analysis. The theme 'conceptualisations of DAH' was then further analysed, and the resulting themes categorised to form conceptual dimensions.

resultsWe recruited 192 participants and conducted 65 interviews (41 with health professionals and 24 with managers) and approximately 1600 hours of non-participant observations (involving 103 health professionals and 72 managers). Despite the wide range of definitions provided by participants, five conceptual dimensions of DAH were identified: (i) biopsychosocial development and holistic care, (ii) acknowledgement of young people as a distinct group, (iii) adjustment of care as the young person develops, (iv) empowerment of the young person by embedding health education and health promotion and (v) interdisciplinary and interorganisational work. Also, some controversies were identified within most dimensions.

conclusionsThis study illustrates the lack of a generalised definition of DAH for young people among UK health professionals and managers, and presents a set of five core dimensions that can inform future research to help define and evaluate DAH for young people.

Indexed as

Adolescent DevelopmentAttitude of Health PersonnelAdolescentAdolescent Health ServicesDelivery of Health CareEnglandHealth Services ResearchHolistic HealthHumansQualitative ResearchAdolescent Health ServicesDevelopmentally Appropriate HealthcareQualitative researchYoung AdultsYouth-Friendly Health Care

Identifiers

PMID26945026
PMCPMC5245734
OpenAlexW2332096534

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.