ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2016
Understanding psychological distress among pediatric cancer caregivers.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
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Who cites it
19 citing papers in PubMed, 37 citations in OpenAlex.
- Research Burden in Pediatric Cancer: A Mixed Methods Study From the PediQUEST Response Trial.Journal of pain and symptom management · 2025Trial
- The Implementation of a Caregiver Distress Screening Initiative in a Pediatric Oncology Healthcare Setting: A Quality Improvement Project.Current oncology (Toronto, Ont.) · 2026Article
- The Emotional and Psychological Impact on Families Raising Children With Special Needs: A Primary Care Perspective.Health science reports · 2026Article
- Article
- Distress Screening in Parents of Children with Cancer During Active Treatment: A Pilot Study.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2026Article
- Associations between area deprivation and mental health by household income among cancer caregivers.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025Article
- Article
- Leveraging the Patient and Family Voice in the Development of Patient Education: Supporting the Pediatric Oncology Experience.Cancers · 2025Article
- Post-traumatic stress disorder, stress burden, and quality of life among caregivers of children with cancer in Egypt.Narra J · 2025Article
- Prevalence and associated factors of post-traumatic stress symptoms in hospitalised children with cancer and their parents in South China: A multicentred cross-sectional study.Asia-Pacific journal of oncology nursing · 2024Article
- Illness cognition and associated socio-demographic and clinical factors in parents of children with leukemia.BMC psychology · 2024Article
- The role of mental health nursing in pediatric hematology/oncology - Part 2: Developing an implementation strategy for an innovative practice.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
- The role of mental health nursing in pediatric hematology/oncology - Part 3: Evaluating feasibility, acceptability, and appreciation.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2024Article
- Caring for Adolescents and Young Adults (AYA) with Cancer: A Scoping Review into Caregiver Burdens and Needs.Cancers · 2023Article
- Caregiving for Interstage Infants: A Continuous Process of Compromise During the Pandemic.World journal for pediatric & congenital heart surgery · 2022Article
- Psychological distress in primary caregivers of children with cancer during COVID-19 pandemic-A single tertiary care center experience.Psycho-oncology · 2022Article
- Health-Related and Economic Burden Among Family Caregivers of Patients with Acute Myeloid Leukemia or Hematological Malignancies.Advances in therapy · 2021Review
- Acquisition of Social Support and Linguistic Characteristics of Social Media Posts About Young Adult Cancer.Journal of adolescent and young adult oncology · 2018Article
- Prevalence and predictors of posttraumatic stress symptoms in parents of children with ongoing treatment for cancer in South China: a multi-centered cross-sectional study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2017Article
Corrections and comments
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Authors and funding
6 authors at 3 institutions in 1 country.
Funding
Abstract
purposeFew studies have examined distress in caregivers of pediatric cancer patients. We evaluated the association of socioeconomic, demographic, and patient clinical factors on caregivers' self-reported psychological distress associated with having a child with cancer.
methodsN = 366 pediatric cancer caregivers completed a self-administered questionnaire from July 2010 to July 2012. The Impact of Event Scale (IES), along with two subscales "intrusion" and "avoidance" measured caregiver cancer-specific distress, with higher scores indicating greater distress. Multivariable linear regression models were used to calculate coefficients (β) and 95 % confidence intervals (95 % CI) of IES by socioeconomic, demographic, and clinical factors.
resultsAverage caregiver IES score was 31.2 (standard deviation (SD) = 16.9, range 0-75). Mean intrusion score was 18.1 (SD 9.8, range 0-35) and avoidance score was 12.8 (SD 9.0, range 0-40). Caregivers with household incomes <$40,000 reported higher mean distress scores than those with incomes ranging from $40,000 to $79,999 (β = 4.45, 95 % CI 0.04-8.87, p = 0.05). Infrequently or never attending religious services, younger child age, and a diagnosis of AML were associated with higher intrusion (all p < 0.05). Caregivers with a child currently receiving therapy reported higher overall IES (β = 5.9, 95 % CI 2.15-9.7, p < 0.01) and intrusion (β = 4.1, 95 % CI 1.9-6.3, p < 0.001) scores compared to those off therapy (β = 3.13, 95 % CI 0.93-5.33, p < 0.01).
conclusionsOur findings identify socioeconomic and clinical factors that influence psychological distress for caregivers of pediatric oncology patients. These findings underscore the importance of developing and testing interventions aimed at evaluating and addressing the psychosocial needs for high-risk caregivers in addition to those of patients.
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