ArticleBMJ supportive & palliative care2016
Using routine data to improve palliative and end of life care.
Article in BMJ supportive & palliative care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 5 syntheses or guidelines pooled it.
- Equitable inclusion of patients with cancer on the palliative care register: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- The effectiveness of out-of-hours palliative care telephone advice lines: A rapid systematic review.Palliative medicine · 2024Pooled it
- Rapid systematic review to identify key barriers to access, linkage, and use of local authority administrative data for population health research, practice, and policy in the United Kingdom.BMC public health · 2022Pooled it
- Socioeconomic position and use of healthcare in the last year of life: A systematic review and meta-analysis.PLoS medicine · 2019Pooled it
- Improving palliative and end-of-life care with machine learning and routine data: a rapid review.HRB open research · 2019Pooled it
- Review
- Identifying aspects of palliative and end-of-life care that are most important to people with lived experience and can be measured using routine data: a series of patient and public involvement workshops.Journal of patient-reported outcomes · 2026Article
- Sex and gender in palliative and end-of-life care: A service evaluation and qualitative analysis.Palliative care and social practice · 2025Article
- Quality of palliative and end-of-life care: a qualitative study of experts' recommendations to improve indicators in Quebec (Canada).BMC palliative care · 2024Article
- Ethnicity and palliative care: we need better data - five key considerations.BMJ supportive & palliative care · 2023Article
- Article
- The use of routine data from primary care practices in Germany to analyze the impact of the outbreak of SARS-CoV-2 on the utilization of primary care services for patients with type 2 diabetes mellitus.BMC primary care · 2022Article
- Opportunities for public involvement in big data research in palliative and end-of-life care.Palliative medicine · 2021Article
- Evidence on the economic value of end-of-life and palliative care interventions: a narrative review of reviews.BMC palliative care · 2021Review
- Using administrative health data for palliative and end of life care research in Ireland: potential and challenges.HRB open research · 2021Article
- Unscheduled and out-of-hours care for people in their last year of life: a retrospective cohort analysis of national datasets.BMJ open · 2020Article
- Developing an ontology for representing the domain knowledge specific to non-pharmacological treatment for agitation in dementia.Alzheimer's & dementia (New York, N. Y.) · 2020Article
- Novel Data Linkages to Characterize Palliative and End-Of-Life Care: Challenges and Considerations.Journal of pain and symptom management · 2019Article
- A Population-Based Conceptual Framework for Evaluating the Role of Healthcare Services in Place of Death.Healthcare (Basel, Switzerland) · 2018Article
- Death at no cost? Persons with no health insurance claims in the last year of life in Switzerland.BMC health services research · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
Palliative and end of life care is essential to healthcare systems worldwide, yet a minute proportion of research funding is spent on palliative and end of life care research. Routinely collected health and social care data provide an efficient and useful opportunity for evaluating and improving care for patients and families. There are excellent examples of routine data research in palliative and end of life care, but routine data resources are widely underutilised. We held four workshops on using routinely collected health and social care data in palliative and end of life care. Researchers presented studies from the UK, USA and Europe. The aim was to highlight valuable examples of work with routine data including work with death registries, hospital activity records, primary care data and specialist palliative care registers. This article disseminates that work, describes the benefits of routine data research and identifies major challenges for the future use of routine data, including; access to data, improving data linkage, and the need for more palliative and end of life care specific data.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.