ArticleMedical student research journal2013
A comprehensive stroke center patient registry: advantages, limitations, and lessons learned.
Article in Medical student research journal, 2013. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
25 citing papers in PubMed.
- Design, implementation and analysis of a quality assurance process for Informed Consents using the DZHK registry TORCH-DZHK1 as an example.PLOS digital health · 2026Article
- The Development of Simple Scoring System to Predict Urinary Tract Infection (UTI) in Patients with Stroke.International journal of endocrinology · 2024Article
- High resolution data modifies intensive care unit dialysis outcome predictions as compared with low resolution administrative data set.PLOS digital health · 2022Article
- Sustaining the National Spinal Cord Injury Registry of Iran (NSCIR-IR) in a Regional Center: Challenges and Solutions.Iranian journal of public health · 2020Article
- Utilizing the Axon Registry® for quality improvement.Neurology. Clinical practice · 2018Article
- The CANadian Pediatric Weight management Registry (CANPWR): lessons learned from developing and initiating a national, multi-centre study embedded in pediatric clinical practice.BMC pediatrics · 2018Observational
- Factor VIII Level is Not Modifiable by Improved Glycemic Control in Patients with Ischemic Stroke.Scientific times journal of diabetes · 2017Article
- Time to Neurological Deterioration in Ischemic Stroke.Medical student research journal · 2017Article
- Effect of aphasia on acute stroke outcomes.Neurology · 2016Article
- Early Neurologic Deterioration after Stroke Depends on Vascular Territory and Stroke Etiology.Journal of stroke · 2016Article
- A Model for Predicting Persistent Elevation of Factor VIII among Patients with Acute Ischemic Stroke.Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association · 2016Article
- Safety and Efficacy of Acute Clopidogrel Load in Patients with Moderate and Severe Ischemic Strokes.Stroke research and treatment · 2016Article
- Left Atrial Enlargement on Transthoracic Echocardiography Predicts Left Atrial Thrombus on Transesophageal Echocardiography in Ischemic Stroke Patients.BioMed research international · 2016Article
- A simple prediction score for developing a hospital-acquired infection after acute ischemic stroke.Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association · 2015Article
- Prolonged Emergency Department Length of Stay as a Predictor of Adverse Outcomes in Patients with Intracranial Hemorrhage.Journal of critical care medicine · 2015Article
- Recurrent posterior strokes in inflammatory bowel disease patients.Gastroenterology research and practice · 2015Article
- The impact of absent A1 segment on ischemic stroke characteristics and outcomes.Journal of stroke and cerebrovascular diseases : the official journal of National Stroke Association · 2015Article
- Trimming the fat in acute ischemic stroke: an assessment of 24-h CT scans in tPA patients.International journal of stroke : official journal of the International Stroke Society · 2015Article
- The Impact of Myocardial Infarction vs. Pneumonia on Outcome in Acute Ischemic Stroke.Journal of cardiovascular disease · 2014Article
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Authors and funding
9 authors.
Funding
Abstract
introductionThe use of a medical data registry allows institutions to effectively manage information for many different investigations related to the registry, as well as evaluate patient's trends over time, with the ultimate goal of recognizing trends that may improve outcomes in a particular patient population.
methodsThe purpose of this article is to illustrate our experience with a stroke patient registry at a comprehensive stroke center and highlight advantages, disadvantages, and lessons learned in the process of designing, implementing, and maintaining a stroke registry. We detail the process of stroke registry methodology, common data element (CDE) definitions, the generation of manuscripts from a registry, and the limitations. ADVANTAGES: The largest advantage of a registry is the ability to prospectively add patients, while allowing investigators to go back and collect information retrospectively if needed. The continuous addition of new patients increases the sample size of studies from year to year, and it also allows reflection on clinical practices from previous years and the ability to investigate trends in patient management over time. LIMITATIONS: The greatest limitation in this registry pertains to our single-entry technique where multiple sites of data entry and transfer may generate errors within the registry. LESSONS LEARNED: To reduce the potential for errors and maximize the accuracy and efficiency of the registry, we invest significant time in training competent registry users and project leaders. With effective training and transition of leadership positions, which are continuous and evolving processes, we have attempted to optimize our clinical research registry for knowledge gain and quality improvement at our center.
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