Evidence map›Paper›PMID 26907539›Full record

ArticleAnnals of epidemiology2016

A novel method for estimating transgender status using electronic medical records.

Douglas Roblin, Joshua Barzilay, Dennis Tolsma, Brandi Robinson, Laura Schild, Lee Cromwell, Hayley Braun, Rebecca Nash, Joseph Gerth, Enid Hunkeler and 3 more

Abstract read
In one paragraph

Article in Annals of epidemiology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 48 papers.

0numbers the graph read from it
0cells of the map it votes in
48citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

48 citing papers in PubMed.

  1. Article
  2. A scoping review of models to identify transgender patients in electronic health records.Journal of the American Medical Informatics Association : JAMIA · 2026
    Article
  3. Review
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Challenging Norms: The Impact of Transgender and Gender-Diverse Realities on Work and School Participation.The American journal of occupational therapy : official publication of the American Occupational Therapy Association · 2024
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Transgender Individuals and Digital Health.Current HIV/AIDS reports · 2022
    Review
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Douglas RoblinSchool of Public Health, Georgia State University, Atlanta; Center for Clinical and Outcomes Research, Kaiser Permanente Georgia, Atlanta.
Joshua BarzilayCenter for Clinical and Outcomes Research, Kaiser Permanente Georgia, Atlanta.
Dennis TolsmaCenter for Clinical and Outcomes Research, Kaiser Permanente Georgia, Atlanta.
Brandi RobinsonCenter for Clinical and Outcomes Research, Kaiser Permanente Georgia, Atlanta.
Laura SchildCenter for Clinical and Outcomes Research, Kaiser Permanente Georgia, Atlanta.
Lee CromwellCenter for Clinical and Outcomes Research, Kaiser Permanente Georgia, Atlanta.
Hayley BraunRollins School of Public Health, Emory University, Atlanta, GA.
Rebecca NashRollins School of Public Health, Emory University, Atlanta, GA.
Joseph GerthEmory College of Arts and Sciences, Atlanta, GA.
Enid HunkelerDivision of Research, Kaiser Permanente, Oakland, CA.
Virginia P QuinnKaiser Permanente Southern California, Pasadena.
Vin TangprichaEmory University, School of Medicine, Atlanta, GA; The Atlanta VA Medical Center, Atlanta, GA.
Michael GoodmanRollins School of Public Health, Emory University, Atlanta, GA. Electronic address: mgoodm2@emory.edu.

Funding

Cohort study of mortality and morbidity in transgender personsR21HD076387 · NICHD · EMORY UNIVERSITY · PI GOODMAN, MICHAEL · 2013 to 2014
$451k
NICHD NIH HHS R21 HD076387NICHD NIH HHS R21HD076387
6 · The paper itself

Abstract

purposeWe describe a novel algorithm for identifying transgender people and determining their male-to-female (MTF) or female-to-male (FTM) identity in electronic medical records of an integrated health system.

methodsA computer program scanned Kaiser Permanente Georgia electronic medical records from January 2006 through December 2014 for relevant diagnostic codes, and presence of specific keywords (e.g., "transgender" or "transsexual") in clinical notes. Eligibility was verified by review of de-identified text strings containing targeted keywords, and if needed, by an additional in-depth review of records. Once transgender status was confirmed, FTM or MTF identity was assessed using a second program and another round of text string reviews.

resultsOf 813,737 members, 271 were identified as possibly transgender: 137 through keywords only, 25 through diagnostic codes only, and 109 through both codes and keywords. Of these individuals, 185 (68%, 95% confidence interval [CI]: 62%-74%) were confirmed as definitely transgender. The proportions (95% CIs) of definite transgender status among persons identified via keywords, diagnostic codes, and both were 45% (37%-54%), 56% (35%-75%), and 100% (96%-100%). Of the 185 definitely transgender people, 99 (54%, 95% CI: 46%-61%) were MTF, 84 (45%, 95% CI: 38%-53%) were FTM. For two persons, gender identity remained unknown. Prevalence of transgender people (per 100,000 members) was 4.4 (95% CI: 2.6-7.4) in 2006 and 38.7 (95% CI: 32.4-46.2) in 2014.

conclusionsThe proposed method of identifying candidates for transgender health studies is low cost and relatively efficient. It can be applied in other similar health care systems.

Indexed as

AlgorithmsDecision Support TechniquesElectronic Health RecordsGender IdentityFemaleGeorgiaHumansMaleTransgender PersonsTranssexualismAlgorithmElectronic medical recordsPrevalenceTransgender

Identifiers

PMID26907539
PMCPMC4772142

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.