Observational studyThe Journal of pediatrics2016
Financial and Social Hardships in Families of Children with Medical Complexity.
Observational study in The Journal of pediatrics, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 64 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
64 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Care of Infants and Children with Tracheostomies: An Official American Thoracic Society Clinical Practice Guideline.American journal of respiratory and critical care medicine · 2025Guideline
- Comprehensive care programmes for children with medical complexity.The Cochrane database of systematic reviews · 2024Pooled it
- Hospital-to-home transitions for children with medical complexity: part 1, a systematic review of reported outcomes.European journal of pediatrics · 2023Pooled it
- The challenges of medically complex breastfed children and their families: A systematic review.Maternal & child nutrition · 2021Pooled it
- Medication Management and Caregiving Stress or Benefit in Children with Medical Complexity.Journal of pediatrics. Clinical practice · 2026Article
- Trends in Regionalization of Pediatric Inpatient and Critical Care by Medical Complexity.Hospital pediatrics · 2026Article
- Children From Families Speaking Languages Other Than English or Spanish, Medical Complexity and PICU Utilization: Single-Center Retrospective Study, 2015-2022.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2026Article
- Technology-Dependent Children Living at Home in Korea: A Population-Based Analysis Using NHIS Claims Data.Journal of Korean medical science · 2026Article
- The impact of the Indiana Complex Care Coordination Collaborative (IC4) on caregivers of children with complex medical conditions.BMC pediatrics · 2026Article
- Continuum of care for patients through medical-legal partnership: improving the transition from NICU stay to home.Journal of perinatology : official journal of the California Perinatal Association · 2026Review
- Trends in Hospital Resource Use for Children With Complex Chronic Conditions.JAMA network open · 2025Article
- The IMPACT Survey: The Economic Impact of Caring for an Individual with Osteogenesis Imperfecta.Advances in therapy · 2025Article
- Coping and Meaning-Making Strategies Described by Parents of Children with Medical Complexity.Clinical practice in pediatric psychology · 2025Article
- Assessing the socioeconomic burden in pediatric inflammatory bowel disease-a survey of families and national providers.Journal of the Canadian Association of Gastroenterology · 2025Article
- Out-of-pocket Costs and Total Payments for Common Congenital Hand Difference Procedures.Plastic and reconstructive surgery. Global open · 2025Article
- Caregivers of Children With Medical Complexity: A Qualitative Study of Their Adaptation.Hospital pediatrics · 2025Article
- Loss and Grief in Parents of Children Hospitalized for Congenital Heart Disease.Hospital pediatrics · 2025Article
- Understaffed Home Nursing and Wellbeing of Families of Children with Medical Complexity.Children (Basel, Switzerland) · 2025Article
- Enhancing the experience and outcomes of children with complex care needs in acute paediatric settings: a realist review protocol.BMJ open · 2025Article
- Toward digital caregiving network interventions for children with medical complexity living in socioeconomically disadvantaged neighborhoods.JAMIA open · 2025Article
4 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
objectiveTo describe hardships experienced by families of children with medical complexity (CMC) and compare them with those experienced by families of children with asthma. STUDY
designWe assessed hardships in a cohort of 167 families of CMC. Surveys assessed sociodemographics and hardships (eg, financial: inability to pay bills; social: limited help from family/friends). CMC cohort hardships were compared with those of an established cohort of children hospitalized with asthma using multivariable logistic regression.
resultsCMC had diagnoses in a median of 5 different complex chronic condition categories (most common neurologic/neuromuscular), and the majority (74%) were dependent on technology. Over 80% of families of CMC reported experiencing ≥1 hardship; 68% with financial and 46% with social hardship. Despite higher socioeconomic status than families with asthma, families of CMC often experienced more hardships. For example, families of CMC were significantly more likely to report failure to pay rent/mortgage (aOR 2.6, 95% CI 1.6, 4.3) and the expectation of little to no help from family/friends (aOR 2.9, 95% CI 1.9, 4.7).
conclusionsFamilies of CMC frequently report financial and social hardships, often at rates higher than families with asthma who were generally of lower socioeconomic status. Identifying and acting upon hardships may be an important addition to the care of CMC.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.