Evidence map›Paper›PMID 26891904›Full record

ArticleMaternal & child nutrition2017

"I was so worried about every drop of milk" - feeding problems at home are a significant concern for parents after major heart surgery in infancy.

Jenifer Tregay, Katherine Brown, Sonya Crowe, Catherine Bull, Rachel Knowles, Jo Wray

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Maternal & child nutrition, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 4 pooled it
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 4 syntheses or guidelines pooled it, 54 citations in OpenAlex.

  1. Guideline
  2. Pooled it
  3. Pooled it
  4. Guideline
  5. Trial
  6. Review
  7. "It's just us": Families' experiences with temporary tube feeding.Nutrition in clinical practice : official publication of the American Society for Parenteral and Enteral Nutrition · 2026
    Article
  8. Evaluation of healthcare professionals' experiences of taking telephone calls from parents of children with congenital heart disease. A risky business.Journal of child health care : for professionals working with children in the hospital and community · 2025
    Article
  9. Article
  10. Article
  11. Observational
  12. Observational
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Article
  19. Article
  20. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Jenifer TregayGreat Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Katherine BrownGreat Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Sonya CroweClinical Operational Research Unit, UCL, London, UK.
Catherine BullGreat Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Rachel KnowlesMRC Centre of Epidemiology for Child Health, UCL Institute of Child Health, London, UK.
Jo WrayGreat Ormond Street Hospital for Children NHS Foundation Trust, London, UK.
Great Ormond Street Hospital for Children NHS Foundation Trust · GBUniversity College Hospital · GBUniversity College London · GB

Funding

Department of Health 10/2002/29
6 · The paper itself

Abstract

Increasing numbers of operations in small infants with complex congenital heart disease are being carried out in the UK year on year, with more surviving the initial operation. However, even after successful surgery some of these infants remain fragile when they are discharged home. The aim of the study was to elicit parents' experiences of caring for a child with complex needs after major congenital heart surgery. We conducted a qualitative study involving semi-structured interviews with parents of 20 children (aged <1-5 months at hospital discharge), who had undergone open heart surgery and subsequently died or been readmitted unexpectedly to intensive care following their initial discharge home. Feeding difficulties following discharge from the specialist surgical centre emerged as one of the most significant parental concerns spontaneously raised in interviews. For some parents the impact of feeding difficulties overshadowed any other cardiac concerns. Key themes centred around feeding management (particularly the practical challenges of feeding their baby), the emotional impact of feeding for parents and the support parents received or needed after discharge with respect to feeding. Caring for a child with congenital heart disease following surgery is demanding, with feeding difficulties being one of the most significant parent stressors. Local health professionals can be a good source of support for parents provided that they are well informed about the needs of a cardiac baby and have realistic expectations of weight gain. Specialist surgical centres should consider addressing issues of parental stress around feeding and weight gain prior to hospital discharge. © 2016 Blackwell Publishing Ltd.

Indexed as

Infant Nutritional Physiological PhenomenaPatient DischargeStress, PsychologicalHeart Defects, CongenitalHumansInfantInfant, NewbornMorbidityParentsQualitative ResearchRisk FactorsUnited KingdomWeight Gain

Identifiers

PMID26891904
PMCPMC6866225
OpenAlexW2286757095

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.