SynthesisEuropean journal of public health2016
Linking databases on perinatal health: a review of the literature and current practices in Europe.
Synthesis in European journal of public health, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Composite neonatal morbidity indicators using hospital discharge data: A systematic review.Paediatric and perinatal epidemiology · 2020Pooled it
- Improving UK data on avoidable perinatal brain injury: review of data dictionaries and consultation.Pediatric research · 2025Review
- Evaluating Perinatal Health in Europe: A Comparison of Routine Population Birth Data Sources.Paediatric and perinatal epidemiology · 2025Article
- Article
- Developing and testing a protocol using a common data model for federated collection and analysis of national perinatal health indicators in Europe.Open research Europe · 2023Article
- Clarity and consistency in stillbirth reporting in Europe: why is it so hard to get this right?European journal of public health · 2022Article
- Gestational age as a predictor for subsequent preterm birth in New South Wales, Australia.BMC pregnancy and childbirth · 2021Article
- Risk factors in early life for developmental coordination disorder: a scoping review.Developmental medicine and child neurology · 2021Article
- Linking a European cohort of children born with congenital anomalies to vital statistics and mortality records: A EUROlinkCAT study.PloS one · 2021Article
- Innovative use of data sources: a cross-sectional study of data linkage and artificial intelligence practices across European countries.Archives of public health = Archives belges de sante publique · 2020Article
- Subprime Babies: The Foreclosure Crisis and Initial Health Endowments.The Russell Sage Foundation journal of the social sciences : RSF · 2019Article
- Quality of IVF status registration in the Estonian Medical Birth Registry: a national record linkage study.Reproductive health · 2018Article
- A step-wise approach to developing indicators to compare the performance of maternity units using hospital administrative data.BJOG : an international journal of obstetrics and gynaecology · 2018Review
- Evaluation of identifier field agreement in linked neonatal records.Journal of perinatology : official journal of the California Perinatal Association · 2017Article
- In the Real-World, Kids Use Medications and Devices.Drugs - real world outcomes · 2017Article
Corrections and comments
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Authors and funding
14 authors.
Funding
Abstract
backgroundInternational comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess the extent to which data are linked routinely for perinatal health research and reporting.
methodsWe conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance.
results516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring.
conclusionResearch using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance.
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