ReviewAmerican journal of Alzheimer's disease and other dementias2016
Younger Onset Dementia.
Review in American journal of Alzheimer's disease and other dementias, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Time to Diagnosis in Dementia: A Systematic Review With Meta-Analysis.International journal of geriatric psychiatry · 2025Pooled it
- The experiences of those affected by parental young onset dementia: A qualitative systematic literature review.Dementia (London, England) · 2021Pooled it
- Global Trends and Disparities in Early-Onset Dementia: Systematic Analysis and Projection from the Global Burden of Diseases 2021 Study.Neuroepidemiology · 2026Article
- Spontaneous conversations as data in young-onset dementia research: a qualitative study.Frontiers in dementia · 2026Article
- Latent classes and progression of Mini-Mental State Examination scores in young-onset dementia: Data from the Swedish Dementia Register.Journal of Alzheimer's disease : JAD · 2025Article
- Article
- Professionals' Views on Social Care Planning and Provision for People With Young-Onset Dementia and Their Families in England: Findings From the DYNAMIC Study.International journal of geriatric psychiatry · 2025Article
- The road to young-onset dementia diagnosis: Findings from the Joint Solutions Project.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Exploring the Delivery and Management of Specialised Post-Diagnostic Care and Support in Young-Onset Dementia: A Cross-Sectional Study.Health services insights · 2025Article
- Post-diagnostic support for persons with young-onset dementia - a retrospective analysis based on data from the Swedish dementia registry SveDem.BMC health services research · 2024Article
- Social care planning and provision for people with young onset dementia and their families: Protocol for the DYNAMIC study.PloS one · 2024Article
- Connecting, learning, supporting: Caregivers' experiences of a stress and distress biopsychosocial group intervention.Dementia (London, England) · 2024Article
- Family Communication about Diagnostic Genetic Testing for Younger-Onset Dementia.Journal of personalized medicine · 2023Article
- Transitions: Experiences of younger persons recently diagnosed with Alzheimer-type dementia.Dementia (London, England) · 2023Article
- Family Members' Experiences of Young-Onset Dementia: Becoming Responsible Yet Feeling Powerless.Journal of multidisciplinary healthcare · 2023Article
- Current UK clinical practice in diagnosing dementia in younger adults: compliance with quality indicators in electronic health records from mental health trusts.Aging & mental health · 2022Article
- Association Between Young-Onset Dementia and Risk of Hospitalization for Motor Vehicle Crash Injury in Taiwan.JAMA network open · 2022Article
- Childhood perspectives of parental young onset dementia: A qualitative data synthesis.Dementia (London, England) · 2022Article
- Music and Psychology & Social Connections Program: Protocol for a Novel Intervention for Dyads Affected by Younger-Onset Dementia.Brain sciences · 2022Article
- What do health professionals need to know about young onset dementia? An international Delphi consensus study.BMC health services research · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This literature review focused on the experience, care, and service requirements of people with younger onset dementia. Systematic searches of 10 relevant bibliographic databases and a rigorous examination of the literature from nonacademic sources were undertaken. Searches identified 304 articles assessed for relevance and level of evidence, of which 74% were academic literature. The review identified the need for (1) more timely and accurate diagnosis and increased support immediately following diagnosis; (2) more individually tailored services addressing life cycle issues; (3) examination of the service needs of those living alone; (4) more systematic evaluation of services and programs; (5) further examination of service utilization, costs of illness, and cost effectiveness; and (6) current Australian clinical surveys to estimate prevalence, incidence, and survival rates. Although previous research has identified important service issues, there is a need for further studies with stronger research designs and consideration of the control of potentially confounding factors.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.