ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2016
Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.
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Who cites it
36 citing papers in PubMed, 1 synthesis or guideline pooled it.
- An examination and proposed definitions of family members' grief prior to the death of individuals with a life-limiting illness: A systematic review.Palliative medicine · 2022Pooled it
- Resilience, preparedness, and distress among family caregivers of patients with advanced cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Trial
- Pre-loss grief among family caregivers: An evolutionary concept analysis.International journal of nursing sciences · 2026Review
- Preparedness of family caregivers for elderly patients with pressure injuries: a study of current status and predictors.BMC nursing · 2026Article
- Adaptation and psychometric properties of the Turkish version of the Nurses' competency in anticipatory grief counselling scale.BMC nursing · 2026Article
- Implementation and acceptability of the Caregiver Care Model in general practice: a mixed-method feasibility study.BMC primary care · 2025Article
- Article
- Correlation Between the Quality of Life of Stroke Caregivers and the Readiness of Patients and Caregivers for Hospital Discharge.Patient preference and adherence · 2025Article
- Grief trajectories and long-term health effects in bereaved relatives: a prospective, population-based cohort study with ten-year follow-up.Frontiers in public health · 2025Article
- How to support caregivers in general practice: development of the Caregiver Care Model.Palliative care and social practice · 2024Article
- [Preparing for the death of older adults: perspectives of primary health care teams, family members and primary caregivers].Cadernos de saude publica · 2024Article
- The role of the caregiver in older patients with advanced prostate cancer: results from the ADHERE Prospective Study of the Meet-URO network.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2023Article
- Psychological distress and associated factors among asthmatic patients in Southern, Ethiopia, 2021.Asthma research and practice · 2023Article
- Physical and social wellbeing of family caregivers of persons with hepatitis B associated chronic liver disease in Ghana: a qualitative study.BMC primary care · 2023Article
- Implementing the Hospice Shared Care Model to Support a Patient with Advanced Colon Cancer: A Case Report.Patient preference and adherence · 2023Article
- The relationship between anticipatory grief and illness uncertainty among Chinese family caregivers of patients with advanced lung cancer: a cross-sectional study.BMC palliative care · 2022Article
- Association between work status and depression in informal caregivers: a collaborative modelling approach.European journal of public health · 2022Article
- Observational
- Dehumanization and burden of care among caregivers of terminally ill patients.Health psychology research · 2021Article
- Pre-Loss Grief in Caregivers of Older Adults with Dementia with Lewy Bodies.Journal of Alzheimer's disease : JAD · 2021Article
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeAt some point in life, most people become caregivers to a terminally ill relative. Previous studies have shown that many caregivers experience psychological distress and declining physical health, but these studies have predominantly been conducted in specialized palliative care settings. Therefore, caregiver studies with a population-based approach are needed. We aimed to describe socio-economic characteristics, situational factors, pre-loss grief symptoms, depressive symptoms, caregiver burden, and health status in a general population of caregivers to terminally ill patients.
methodWe conducted a nationwide population-based cohort study. Caregivers were systematically recruited through patients registered with drug reimbursement for terminal illness in 2012. Data on socio-economic characteristics was mainly obtained from Danish registries, whereas data on situational factors, distress, and health was measured in questionnaires.
resultsOf patients to responding caregivers (n = 3635), 89 % suffered from cancer, predominantly lung cancer (23 %). Of responding caregivers, 62 % were partners and 29 % were adult children. In total, one third of caregivers reported severe outcome, 15 % reported severe pre-loss grief symptoms, 16.1 % had moderate to severe depressive symptoms, and 12 % experienced high caregiver burden. Partners had the highest levels of pre-loss grief and depressive symptoms, while adult children reported the highest levels of caregiver burden.
conclusionsFrom this cohort, which was estimated to be representative of caregivers to terminally ill relatives in the general population, we found high levels of pre-loss grief, depressive symptoms, and/or caregiver burden in one third of all caregivers. These findings call for increased focus on caregivers' need of support.
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