Evidence map›Paper›PMID 26883647›Full record

ArticleJournal of autism and developmental disorders2016

Life Satisfaction Among Mothers of Individuals with Prader-Willi Syndrome.

Carolyn M Shivers, Caroline L Leonczyk, Elisabeth M Dykens

Abstract read
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In one paragraph

Article in Journal of autism and developmental disorders, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Article
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  5. Article
  6. Imprinting disorders.Nature reviews. Disease primers · 2023
    Review
  7. Article
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  9. Article
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  11. A cross-comparison of cognitive ability across 8 genomic disorders.Current opinion in genetics & development · 2021
    Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Carolyn M ShiversDepartment of Human Development, Virginia Tech, 358 Wallace Hall, Blacksburg, VA, 24061, USA. carolyn.m.shivers@gmail.com.ORCID http://orcid.org/0000-0001-8502-4471
Caroline L LeonczykVanderbilt Kennedy Center for Research on Human Development, Vanderbilt University, Nashville, TN, USA.
Elisabeth M DykensVanderbilt Kennedy Center for Research on Human Development, Vanderbilt University, Nashville, TN, USA.

Funding

THREE-TIERED PREVENTION MODEL TO BETTER SERVE ALL STUDENP30HD015052 · NICHD · VANDERBILT UNIVERSITY · PI DYKENS, ELISABETH MAY · 1985 to 2014
$18.6M
Training and Career Development ComponentU54HD061222 · NICHD · UNIVERSITY OF ALABAMA AT BIRMINGHAM · PI PERCY, ALAN KENNETH · 2009 to 2019
$12.4M
Research Project: Sensory and Multisensory Contributions to AutismU54HD083211 · NICHD · VANDERBILT UNIVERSITY MEDICAL CENTER · PI DYKENS, ELISABETH MAY · 2015 to 2019
$7.1M
Predicting Phenotypic Trajectories in Prader-Willi SyndromeR01HD035684 · NICHD · VANDERBILT UNIVERSITY · PI DYKENS, ELISABETH MAY · 1997 to 2014
$3.3M
NICHD NIH HHS P30HD015052NICHD NIH HHS R01 HD035684NICHD NIH HHS R01HD035684NICHD NIH HHS U54 HD061222NICHD NIH HHS U54 HD083211
6 · The paper itself

Abstract

Mothers of individuals with Prader-Willi syndrome (PWS) often experience numerous stressors, even when compared to mothers of children with other intellectual and developmental disabilities. Despite this, these mothers show great variability in self-reported life satisfaction. Using data from a longitudinal study of individuals with PWS and their families, the present study analyzed factors related to maternal life satisfaction, both cross-sectionally and over time. Results show that both child factors (e.g., behavior problems, hyperphagia) and maternal factors (e.g., stress, coping style) were significantly related to maternal life satisfaction. However, none of the tested variables predicted change in life satisfaction over time. Research and practice implications are discussed.

Indexed as

Personal SatisfactionAdaptation, PsychologicalAdolescentAdultAgedAged, 80 and overChildChild, PreschoolFemaleHumansHyperphagiaLongitudinal StudiesMaleMiddle AgedMothersPrader-Willi SyndromeCopingLife satisfactionMothersPrader-Willi syndrome

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.