Evidence map›Paper›PMID 26872912›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2016

Known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) in adolescents and young adults with special healthcare needs.

Carrie R Howell, Heather E Gross, Bryce B Reeve, Darren A DeWalt, I-Chan Huang

Registry-linked trialAbstract readValidation Study
In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03510117 (Creating and Optimizing Mindfulness Measures to Enhance and Normalize Clinical Evaluation), which is not on this map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03510117 nacompletednot on this mapstarted 2017, after this paper: background citation

Creating and Optimizing Mindfulness Measures to Enhance and Normalize Clinical Evaluation (COMMENCE)

TypeinterventionalSponsorNorthwestern UniversityRan2017 to 2022Enrolled8,152ConditionsMindfulnessArmsMindfulness
3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Variability of PROMIS Scores Across Hand Conditions.The Journal of hand surgery · 2019
    Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Carrie R HowellDepartment of Epidemiology and Cancer Control, MS 735, St. Jude Children's Research Hospital, 262 Danny Thomas Place, Memphis, TN, 38105, USA.
Heather E GrossCecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Bryce B ReeveCecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Darren A DeWaltCecil G. Sheps Center for Health Services Research, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
I-Chan HuangDepartment of Epidemiology and Cancer Control, MS 735, St. Jude Children's Research Hospital, 262 Danny Thomas Place, Memphis, TN, 38105, USA. i-chan.huang@stjude.org.

Funding

NIH PROMIS Statistical Coordinating Center(RMI)U01AR052177 · NIAMS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CELLA, DAVID · 2004 to 2010
$10.6M
Validating and Extending the PROMIS Sexual Function Measure for Clinical ResearchU01AR052186 · NIAMS · DUKE UNIVERSITY · PI WEINFURT, KEVIN P · 2004 to 2013
$9.5M
PROMIS Pediatrics: Longitudinal Validation and Linking Pediatric and Adult Item BU01AR052181 · NIAMS · UNIV OF NORTH CAROLINA CHAPEL HILL · PI REEVE, BRYCE B · 2004 to 2013
$9.1M
Patient reported outcomes in routine clinical care of patients infected with HIVU01AR057954 · NIAMS · UNIVERSITY OF WASHINGTON · PI CRANE, HEIDI M., CRANE, PAUL K · 2009 to 2013
$7.8M
Validation and domain development in mental health and sleep-wake functionU01AR052155 · NIAMS · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI PILKONIS, PAUL A · 2004 to 2013
$6.0M
Validation of PROMIS in Diverse Cancer PopulationsU01AR057971 · NIAMS · GEORGETOWN UNIVERSITY · PI MOINPOUR, CAROL M, POTOSKY, ARNOLD L · 2009 to 2013
$5.7M
Improving Assessment of Physical Function and Drug Safety in Health and DiseaseU01AR052158 · NIAMS · STANFORD UNIVERSITY · PI KRISHNAN, ESWAR · 2004 to 2013
$5.6M
PROMIS Technical CenterU54AR057943 · NIAMS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI GERSHON, RICHARD · 2009 to 2013
$5.3M
UW Center on Outcomes Research in Rehabilitation(RMI)U01AR052171 · NIAMS · UNIVERSITY OF WASHINGTON · PI AMTMANN, DAGMAR · 2004 to 2008
$5.0M
Pediatric PROMIS: Advancing the Measurement and Conceptualizaiton of Child HealthU01AR057956 · NIAMS · CHILDREN'S HOSP OF PHILADELPHIA · PI FORREST, CHRISTOPHER B · 2009 to 2014
$4.9M
Ecolog validity- patient-reported chronic disease*(RMI)U01AR052170 · NIAMS · STATE UNIVERSITY NEW YORK STONY BROOK · PI STONE, ARTHUR A · 2004 to 2008
$3.8M
PROMIS Statistical CenterU54AR057951 · NIAMS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CELLA, DAVID · 2009 to 2014
$3.6M
NIAMS NIH HHS U01 AR052155NIAMS NIH HHS U01 AR052158NIAMS NIH HHS U01 AR052170NIAMS NIH HHS U01 AR052171NIAMS NIH HHS U01 AR052177NIAMS NIH HHS U01 AR052181NIAMS NIH HHS U01 AR052186NIAMS NIH HHS U01 AR057929NIAMS NIH HHS U01 AR057936NIAMS NIH HHS U01 AR057940NIAMS NIH HHS U01 AR057948NIAMS NIH HHS U01 AR057954NIAMS NIH HHS U01 AR057956NIAMS NIH HHS U01 AR057967NIAMS NIH HHS U01 AR057971NIAMS NIH HHS U54 AR057926NIAMS NIH HHS U54 AR057943NIAMS NIH HHS U54 AR057951NICHD NIH HHS K23 HD057146
6 · The paper itself

Abstract

purposeTo examine known-groups validity of the Patient-Reported Outcomes Measurement Information System (PROMIS(®)) Short Forms (SFs) for adolescents and young adults with special healthcare needs (SHCN) using data collected from the PROMIS Linking Study.

methodsIn total, 292 adolescents aged 14-17.9 years and 300 young adults aged 18-20 years with SHCN from the PROMIS Linking Study were used for analyses. Presence of SHCN was classified into three categories (medication use, service use, and functional limitations). HRQoL was measured with the PROMIS Pediatric and Adult SFs. Differences in health-related quality of life (HRQoL) domain scores between SHCN sample and the norms of the PROMIS pediatric and adult calibration samples, respectively, were compared using t tests. Associations of HRQoL scores with the presence of individual SHCN categories were tested using linear regression.

resultsAll HRQoL domain scores for the SHCN samples were significantly worse than the respective calibration samples. Adolescents and young adults with SHCN-related service use and functional limitations reported worse HRQoL than those without service use and functional limitations (p's < 0.01).

conclusionsPROMIS Pediatric and Adult SFs possess satisfactory known-groups validity related to SHCN status.

Indexed as

Health StatusPatient Reported Outcome MeasuresSurveys and QuestionnairesAdolescentAdultFemaleHealth Services Needs and DemandHumansMaleMiddle AgedPediatricsQuality of LifeYoung AdultAdolescentsHealth-related quality of lifePatient-Reported Outcomes Measurement Information System (PROMIS®)Special healthcare needsYoung adults

Identifiers

PMID26872912
PMCPMC4893933

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.