ArticleDatabase : the journal of biological databases and curation2016
Portal of medical data models: information infrastructure for medical research and healthcare.
Article in Database : the journal of biological databases and curation, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 40 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
40 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Common data models and data standards for tabular health data: a systematic review.BMC medical informatics and decision making · 2025Pooled it
- Effects of computerized decision support system implementations on patient outcomes in inpatient care: a systematic review.Journal of the American Medical Informatics Association : JAMIA · 2018Pooled it
- Enhanced Health Study Discoverability: Graph-Based Analysis Approach.JMIR medical informatics · 2026Article
- Decentralized rare disease studies in Germany: first results and hurdles of secondary use of patient data.BMC medical informatics and decision making · 2026Article
- Enabling interoperability across disparate health data sources using Large Language Models.PLOS digital health · 2026Article
- Lessons learned from implementing FAIRification workflows in diabetes research in Germany.PLOS digital health · 2026Article
- Reusing data from HL7 CDA-based shared EHR systems for clinical trial conduct: a method for analyzing feasibility.BMC medical informatics and decision making · 2025Article
- Development and application of a clinical core data set for deep brain stimulation in Parkinson's disease, dystonia or tremor: from data collection to data exchange and data sharing.Neurological research and practice · 2025Article
- Semantic search helper: A tool based on the use of embeddings in multi-item questionnaires as a harmonization opportunity for merging large datasets - A feasibility study.European psychiatry : the journal of the Association of European Psychiatrists · 2025Article
- EyeMatics: An Ophthalmology Use Case Within the German Medical Informatics Initiative.JMIR medical informatics · 2024Article
- The Journey to a FAIR CORE DATA SET for Diabetes Research in Germany.Scientific data · 2024Article
- [FAIR health data in the national and international data space].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2024Article
- Europe's Largest Research Infrastructure for Curated Medical Data Models with Semantic Annotations.Methods of information in medicine · 2024Article
- Integration of Patient-Reported Outcome Data Collected Via Web Applications and Mobile Apps Into a Nation-Wide COVID-19 Research Platform Using Fast Healthcare Interoperability Resources: Development Study.Journal of medical Internet research · 2024Article
- Next-generation study databases require FAIR, EHR-integrated, and scalable Electronic Data Capture for medical documentation and decision support.NPJ digital medicine · 2024Article
- Patient Identification and Tumor Identification Management: Quality Program in a Cancer Multicentric Clinical Data Warehouse.Cancer informatics · 2023Article
- Semantic interoperability: ontological unpacking of a viral conceptual model.BMC bioinformatics · 2022Article
- Standardized Description of the Feature Extraction Process to Transform Raw Data Into Meaningful Information for Enhancing Data Reuse: Consensus Study.JMIR medical informatics · 2022Article
- Harmonization and standardization of data for a pan-European cohort on SARS- CoV-2 pandemic.NPJ digital medicine · 2022Article
- ELaPro, a LOINC-mapped core dataset for top laboratory procedures of eligibility screening for clinical trials.BMC medical research methodology · 2022Article
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionInformation systems are a key success factor for medical research and healthcare. Currently, most of these systems apply heterogeneous and proprietary data models, which impede data exchange and integrated data analysis for scientific purposes. Due to the complexity of medical terminology, the overall number of medical data models is very high. At present, the vast majority of these models are not available to the scientific community. The objective of the Portal of Medical Data Models (MDM, https://medical-data-models.org) is to foster sharing of medical data models.
methodsMDM is a registered European information infrastructure. It provides a multilingual platform for exchange and discussion of data models in medicine, both for medical research and healthcare. The system is developed in collaboration with the University Library of Münster to ensure sustainability. A web front-end enables users to search, view, download and discuss data models. Eleven different export formats are available (ODM, PDF, CDA, CSV, MACRO-XML, REDCap, SQL, SPSS, ADL, R, XLSX). MDM contents were analysed with descriptive statistics.
resultsMDM contains 4387 current versions of data models (in total 10,963 versions). 2475 of these models belong to oncology trials. The most common keyword (n = 3826) is 'Clinical Trial'; most frequent diseases are breast cancer, leukemia, lung and colorectal neoplasms. Most common languages of data elements are English (n = 328,557) and German (n = 68,738). Semantic annotations (UMLS codes) are available for 108,412 data items, 2453 item groups and 35,361 code list items. Overall 335,087 UMLS codes are assigned with 21,847 unique codes. Few UMLS codes are used several thousand times, but there is a long tail of rarely used codes in the frequency distribution. DISCUSSION: Expected benefits of the MDM portal are improved and accelerated design of medical data models by sharing best practice, more standardised data models with semantic annotation and better information exchange between information systems, in particular Electronic Data Capture (EDC) and Electronic Health Records (EHR) systems. Contents of the MDM portal need to be further expanded to reach broad coverage of all relevant medical domains. Database URL: https://medical-data-models.org.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.