Evidence map›Paper›PMID 26860859›Full record

ArticleBMC palliative care2016

Interviews with Irish healthcare workers from different disciplines about palliative care for people with Parkinson's disease: a definite role but uncertainty around terminology and timing.

Siobhan Fox, Alison Cashell, W George Kernohan, Marie Lynch, Ciara McGlade, Tony O'Brien, Sean S O'Sullivan, Suzanne Timmons

Abstract read
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In one paragraph

Article in BMC palliative care, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 3 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
18citing papers in PubMed, 3 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

18 citing papers in PubMed, 3 syntheses or guidelines pooled it.

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  18. Achieving Prudent Dementia Care (International journal of integrated care · 2016
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Siobhan FoxCentre for Gerontology and Rehabilitation, St. Finbarr's Hospital, Douglas Road, Cork City, Ireland. s.fox@ucc.ie.
Alison CashellParkinson's Association of Ireland, Dublin, Ireland. alicashell@gmail.com.
W George KernohanInstitute of Nursing and Health Research, University of Ulster, Co., Antrim, UK. wg.kernohan@ulster.ac.uk.
Marie LynchIrish Hospice Foundation, Dublin, Ireland. marie.lynch@hospice-foundation.ie.
Ciara McGladeCentre for Gerontology and Rehabilitation, School of Medicine, University College Cork, Cork, Ireland. ciaramcglade@gmail.com.
Tony O'BrienMarymount University Hospital and Hospice, Co., Cork, Ireland. tony.obrien1@hse.ie.
Sean S O'SullivanCork University Hospital, Cork, Ireland. Sean.osullivan@hse.ie.
Suzanne TimmonsCentre for Gerontology and Rehabilitation, School of Medicine, University College Cork, Cork, Ireland. s.timmons@ucc.ie.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAn integrated palliative care approach is recommended in all life-limiting diseases, including Parkinson's disease (PD). However research shows that people with PD have unmet palliative care needs. The study aimed to explore multidisciplinary healthcare workers' (HCWs) views on palliative care for people with PD, identifying perceived barriers and facilitators.

methodsA qualitative design was used; data was analysed using Thematic Analysis. Semi-structured interviews were conducted with 30 HCWs, working either with people with PD or in a palliative care setting in Ireland.

resultsA number of perceived barriers were evident helping to account for the previously reported unmet palliative care needs in PD. A lack of education about PD and palliative care meant that HCWs were unsure of the appropriateness of referral, and patients and carers weren't equipped with information to seek palliative care. A lack of communication between PD and palliative care specialists was seen to impede collaboration between the disciplines. Uncertainty about the timing of palliative care meant that it was often not introduced until a crisis point, despite the recognised need for early planning due to increased prevalence of dementia.

conclusionsMost HCWs recognised a need for palliative care for people with PD; however several barriers to implementing a palliative care approach in this population need to be addressed. Implications for clinical practice and policy include the need for an integrated model of care, and education for all HCWs, patients, carers, and the public on both the nature of advanced PD, and the potential of palliative care in support of patients and their family members.

Indexed as

Attitude of Health PersonnelHealth PersonnelAgedFemaleFocus GroupsHealth Services AccessibilityHumansIrelandMaleMiddle AgedPalliative CareParkinson DiseaseQualitative ResearchTime FactorsUncertainty

Identifiers

PMID26860859
PMCPMC4746816

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.