Evidence map›Paper›PMID 26848713›Full record

SynthesisCancer2016

Social well-being among adolescents and young adults with cancer: A systematic review.

Echo L Warner, Erin E Kent, Kelly M Trevino, Helen M Parsons, Bradley J Zebrack, Anne C Kirchhoff

Registry-linked trialAbstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Cancer, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT03778658 (AYA-UNITE), which is not on this map. Cited by 170 papers, 7 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
170citing papers in PubMed, 7 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT03778658 nacompletednot on this mapstarted 2020, after this paper: background citation

AYA-UNITE (Utilizing Novel Information Technology to Promote Exercise and Well-Being)

TypeinterventionalSponsorMilton S. Hershey Medical CenterRan2020 to 2022Enrolled7ConditionsAdolescent, Young Adult, Cancer, Physical ActivityArmsPhysical Activity Intervention
3 · Its place in the literature

Who cites it

170 citing papers in PubMed, 7 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Pooled it
  4. Pooled it
  5. Pooled it
  6. Pooled it
  7. Self-efficacy in symptom management for adolescents and young adults with cancer: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021
    Pooled it
  8. Trial
  9. Trial
  10. Trial
  11. Trial
  12. Article
  13. Article
  14. Observational
  15. Article
  16. Article
  17. The experience of young adult cancer survivors' engagement with nature.Journal of cancer survivorship : research and practice · 2026
    Article
  18. Article
  19. Trends in emotional distress among childhood, adolescent, and young adult (CAYA) cancer survivors: A decade-long study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026
    Article
  20. Article

110 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Echo L WarnerCancer Control and Population Sciences, Huntsman Cancer Institute, Salt Lake City, Utah.
Erin E KentOutcomes Research Branch, National Cancer Institute, National Institutes of Health, Bethesda, Maryland.
Kelly M TrevinoDepartment of Medicine, Weill Cornell Medicine, New York, New York.
Helen M ParsonsDepartment of Epidemiology and Biostatistics, University of Texas Health Science Center, San Antonio, Texas.
Bradley J ZebrackUniversity of Michigan School of Social Work, Ann Arbor, Michigan.
Anne C KirchhoffCancer Control and Population Sciences, Huntsman Cancer Institute, Salt Lake City, Utah.

Funding

Institute for Integration of Medicine & Science: A Partnership to Improve HealthUL1TR001120 · NCATS · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI CLARK, ROBERT A, HARGREAVES, KENNETH M · 2013 to 2017
$16.5M
Anxiety With Cancer in the Elderly (ACE): A Cognitive-Behavioral InterventionK23AG048632 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI MCCONNELL, KELLY · 2014 to 2018
$782k
The Impact of the Medicare Modernization Act of 2003 on Cancer CareK07CA175063 · NCI · UNIVERSITY OF TEXAS HLTH SCIENCE CENTER · PI PARSONS, HELEN M · 2013 to 2015
$384k
NCATS NIH HHS UL1 TR001120NCI NIH HHS K07 CA175063NCI NIH HHS K07CA175063NIA NIH HHS K23 AG048632
6 · The paper itself

Abstract

backgroundA cancer diagnosis during adolescence or young adulthood may negatively influence social well-being. The existing literature concerning the social well-being of adolescents and young adults (AYAs) with cancer was reviewed to identify gaps in current research and highlight priority areas for future research.

methodsA systematic review of the scientific literature published in English from 2000 through 2014 was performed. Eligible studies included patients and survivors diagnosed between the ages of 15 to 39 years that reported on social well-being domains in the City of Hope Cancer Survivor Quality of Life Model. Each article was reviewed for relevance using a standardized template. A total of 253 potential articles were identified. After exclusions, a final sample of 26 articles identified domains of social well-being that are believed to be understudied among AYAs with cancer: 1) educational attainment, employment, and financial burden; 2) social relationships; and 3) supportive care. Articles were read in their entirety, single coded, and summarized according to domain.

resultsAYAs with cancer report difficulties related to employment, educational attainment, and financial stability. They also report problems with the maintenance and development of peer and family relationships, intimate and marital relationships, and peer support. Supportive services are desired among AYAs. Few studies have reported results in reference to comparison samples or by cancer subtypes.

conclusionsFuture research studies on AYAs with cancer should prioritize the inclusion of underserved AYA populations, more heterogeneous cancer samples, and comparison groups to inform the development of supportive services. Priority areas for potential intervention include education and employment reintegration, and social support networks.

Indexed as

Quality of LifeAdaptation, PsychologicalAdolescentAdultChildFemaleHumansMaleNeoplasmsSocial SupportSurvivorsYoung Adultadolescent and young adultcancereducationemploymentsocial support

Identifiers

PMID26848713
PMCPMC5007077

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.