ArticleJournal of palliative medicine2016
End-of-Life Decision Making and Communication of Bereaved Family Members of African Americans with Serious Illness.
Article in Journal of palliative medicine, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05165888 (Targeting Bias to Reduce Disparities in End of Life Care), which is not on this map. Cited by 35 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Targeting Bias to Reduce Disparities in End of Life Care: Clinician Communication Behavior in Simulated Patient Encounters Study
Who cites it
35 citing papers in PubMed, 3 syntheses or guidelines pooled it, 60 citations in OpenAlex.
- Timing of Goals of Care Discussions in Nursing Homes: A Systematic Review.Journal of the American Medical Directors Association · 2023Pooled it
- Extent and Predictors of Decision Regret among Informal Caregivers Making Decisions for a Loved One: A Systematic Review.Medical decision making : an international journal of the Society for Medical Decision Making · 2020Pooled it
- Associations Among End-of-Life Discussions, Health-Care Utilization, and Costs in Persons With Advanced Cancer: A Systematic Review.The American journal of hospice & palliative care · 2019Pooled it
- Quality of communication in intensive care units: how families view interactions with doctors versus nurses.BMC health services research · 2026Article
- Getting on "the same page": a qualitative study on strategies for healthcare professionals in cross-cultural communication about serious neurological illness.BMC palliative care · 2025Article
- 'Regrets become a lasting source of pain': A qualitative study on family caregivers' experiences leading up to a relative's death.Palliative medicine · 2025Article
- Racial, Ethnic, and Socioeconomic Differences in Critical Care Near the End of Life: A Narrative Review.Critical care clinics · 2024Review
- Mid-Atlantic primary care providers' perception of barriers and facilitators to end-of-life conversation.Palliative care and social practice · 2024Article
- Article
- Prevalence of long-term decision regret and associated risk factors in a large cohort of ICU surrogate decision makers.Critical care (London, England) · 2023Article
- Characterizing end-of-life communication in families.Palliative care and social practice · 2023Article
- Racial and Ethnic Differences in Informal and Formal Advance Care Planning Among U.S. Older Adults.Journal of aging and health · 2022Article
- A Decade of Studying Drivers of Disparities in End-of-Life Care for Black Americans: Using the NIMHD Framework for Health Disparities Research to Map the Path Ahead.Journal of pain and symptom management · 2022Review
- Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and Approach.Journal of pain and symptom management · 2022Article
- Hospice Enrollment, Future Hospitalization, and Future Costs Among Racially and Ethnically Diverse Patients Who Received Palliative Care Consultation.The American journal of hospice & palliative care · 2022Article
- A prospective cohort study assessing aggressive interventions at the end-of-life among patients with solid metastatic cancer.BMC palliative care · 2022Article
- End-of-life discussions reduce the utilization of life-sustaining treatments during the last three months of life in cancer patients.Scientific reports · 2022Article
- Top Ten Tips Palliative Care Clinicians Should Know About Delivering Antiracist Care to Black Americans.Journal of palliative medicine · 2022Review
- Investigating Key Factors Related to the Decision of a Do-Not-Resuscitate Consent.International journal of environmental research and public health · 2021Article
- Will You Hear Me? Have You Heard Me? Do You See Me? Adding Cultural Humility to Resource Allocation and Priority Setting Discussions in the Care of African American Patients With COVID-19.Journal of pain and symptom management · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
Abstract
objectiveThe study objective was to examine factors that influence African American (AA) family members' end-of-life care decision outcomes for a relative who recently died from serious illness.
methodsA cross-sectional descriptive study design was used. Binary logistic and linear regressions were used to identify factors associated with decision regret and decisional conflict. Forty-nine bereaved AA family members of AA decedents with serious illness who died two to six months prior to enrollment were recruited from the palliative care program in a safety net hospital and a metropolitan church in the Midwest. Measurements used were the Decisional Conflict, Decision Regret, Beliefs and Values, and Quality of Communication scales.
resultsFamily members who reported higher quality of communication with health care providers had lower decisional conflict. Family members of decedents who received comfort-focused care (CFC) had significantly less decision regret than family members of those who received life-prolonging treatment (LPT). Family members who reported stronger beliefs and values had higher quality of communication with providers and lower decisional conflict.
conclusionsThis research adds to a small body of literature on correlates of end-of-life decision outcomes among AAs. Although AAs' preference for aggressive end-of-life care is well-documented, we found that receipt of CFC was associated with less decision regret. To reduce decisional conflict and decision regret at the end of life, future studies should identify strategies to improve family member-provider communication, while considering relevant family member and decedent characteristics.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.