ArticleJournal of cancer survivorship : research and practice2016
Adult childhood cancer survivors' narratives of managing their health: the unexpected and the unresolved.
Article in Journal of cancer survivorship : research and practice, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it, 27 citations in OpenAlex.
- Experiences of Cancer-Related Cognitive Impairment Across Cancer Types: Qualitative Systematic Review.JMIR cancer · 2025Pooled it
- Article
- Identifying concerns and needs in AYA survivors of pediatric cancer: a scoping review.Frontiers in psychology · 2025Review
- Surveillance after childhood cancer: are survivors with an increased risk for cardiomyopathy regularly followed-up?British journal of cancer · 2023Article
- "I have to do things differently now, but I make it work"-young childhood cancer survivors' experiences of self-management in everyday living.Journal of cancer survivorship : research and practice · 2022Article
- Determinants of surveillance for late effects in childhood cancer survivors: a qualitative study using the Theoretical Domains Framework.Journal of cancer survivorship : research and practice · 2022Article
- Hodgkin lymphoma survivor perspectives on their engagement in treatment decision-making and discussion of late effects.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Identifying and exploring the self-management strategies used by childhood cancer survivors.Journal of cancer survivorship : research and practice · 2021Article
- Facing the unknown: uncertain fertility in young adult survivors of childhood cancer.Journal of cancer survivorship : research and practice · 2021Article
- Telling the Story of Childhood Cancer-The Experience of Families After Treatment.Journal of patient experience · 2020Article
- Survivor clinic attendance among pediatric- and adolescent-aged survivors of childhood cancer.Journal of cancer survivorship : research and practice · 2019Article
- Healthcare system barriers to long-term follow-up for adult survivors of childhood cancer in British Columbia, Canada: a qualitative study.Journal of cancer survivorship : research and practice · 2018Article
- "It's Not JUST Skin Cancer": Understanding Their Cancer Experience From Melanoma Survivor Narratives Shared Online.Health communication · 2018Article
- The Quality of Working Life Questionnaire for Cancer Survivors (QWLQ-CS): a Pre-test Study.BMC health services research · 2016Observational
Corrections and comments
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Authors and funding
6 authors at 4 institutions in 1 country.
Funding
Abstract
purposeCurrently, 80 % of children diagnosed with cancer will be cured. However, many of these survivors go on to develop long-term health problems or late effects related to their previous cancer and therapy and require varying degrees of lifelong follow-up care. The purpose of this study was to identify the different ways that adult survivors of childhood cancer manage their medical and psychological challenges.
methodsData from in-depth interviews with 30 adult survivors of a childhood cancer (9 to 38 years after diagnosis, currently 22 to 43 years of age, 60 % women) were analyzed using qualitative, thematic narrative analysis methods.
resultsThe survivors had not expected the medical, psychological, and social challenges that arose over time and that often remained unresolved. Five narrative themes revealed distinct ways that survivors managed their health challenges: (1) trying to forget cancer, (2) trusting the system to manage my follow-up care, (3) being proactive about my health, (4) stumbling from one problem to the next, and (5) struggling to find my way.
conclusionsVariation exists in the ways in which childhood cancer survivors frame their health, their perceived significance of health challenges, strategies used to manage health, interactions with healthcare professionals and the health system, and parental involvement. IMPLICATIONS FOR CANCER SURVIVORS: This research provides novel insights that can be used to inform the development of patient-centered health services that promote the assessment and tailoring of care to the diverse ways survivors enact their agency, as well as their psychoeducational coping styles, therapeutic relationship needs, and information needs.
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