ArticleThe journal of spinal cord medicine2017
Outcomes and reflections on a consensus-building workshop for developing a spinal cord injury-related chronic pain research agenda.
Article in The journal of spinal cord medicine, 2017. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- A national strategy for a canadian limb loss and limb difference registry.Canadian prosthetics & orthotics journal · 2026Article
- Article
- A pain research strategy for Europe: A European survey and position paper of the European Pain Federation EFIC.European journal of pain (London, England) · 2025Article
- Priorities of the Pediatric Spinal Cord Injury Population: An International Study on Patient-Reported Outcome Measures.Children (Basel, Switzerland) · 2024Article
- Implementing Lived Experience Workshops in Regional Areas of British Columbia to Enhance Clinicians' Confidence in Spinal Cord Injury Care: An Evaluation.Healthcare (Basel, Switzerland) · 2024Article
- Pediatric health and life domain priorities: A national survey of people with spinal cord injury and their parents and caregivers.The journal of spinal cord medicine · 2024Article
- Health and LifeDomain ResearchPriorities in Children, Adolescents and Young Adults With Pediatric-Onset Spinal Cord Injury: A National Cross-Sectional Survey in England.Topics in spinal cord injury rehabilitation · 2022Article
- Advancing primary and community care for persons with spinal cord injury: Key findings from a Canadian summit.The journal of spinal cord medicine · 2020Article
- "People Who Have Something Better To Do Don't Suffer As Much".The journal of spinal cord medicine · 2017Article
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Authors and funding
7 authors.
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Abstract
Context/ Objective: Chronic pain following spinal cord injury (SCI) is a prevalent secondary health condition that significantly impacts quality of life (QoL). Although growing, the number of available effective pain management approaches for SCI is limited. Recognizing the need to "kick-start" activity on this topic, a consensus-building workshop on developing a research agenda for SCI-related chronic pain was held in 2006 with an expert panel. The present paper describes the processes of the consensus-workshop and its associated outcomes towards advancing the research agenda for SCI-related pain in Canada. A commentary on the current state of knowledge regarding SCI-related pain is also provided.
methodsThirty-nine stakeholders (researchers, clinicians, policy-makers, SCI advocates, and people with SCI) attended the consensus-workshop. A modified Delphi approach was employed to gain consensus on identifying the top five SCI pain research priorities for improving QoL post-SCI. As well, project planning along with infrastructure support opportunities were discussed.
resultsThe top five pain research priorities were: 1) pain management and treatment; 2) measurement tools; 3) health services policy and advocacy; 4) knowledge transfer; and 5) mechanisms of pain. Recommendations related to the priorities and related resources were generated, and pilot work was initiated.
conclusionsThe consensus workshop provided an initial roadmap for research on SCI-related chronic pain, and supported five pilot projects on the identified priorities. Reflections on the current research landscape in Canada and abroad suggest increased activity towards addressing pain post-SCI but evidence-based approaches are still lacking.
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