ArticleJournal of pediatric and adolescent gynecology2016
Parents' and Adolescents' Attitudes about Parental Involvement in Clinical Research.
Article in Journal of pediatric and adolescent gynecology, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
8 citing papers in PubMed.
- Adolescent and Parent Perceptions about Participation in Biomedical Sexual Health Trials.Ethics & human research · 2020Article
- Adolescent-Parent Dyadic Retention in an Interview Study and Changes in Willingness to Participate in a Hypothetical Microbicide Safety Study.Journal of pediatric and adolescent gynecology · 2018Article
- Adolescents' and Parents' Attitudes Toward Adolescent Clinical Trial Participation: Changes Over One Year.Journal of empirical research on human research ethics : JERHRE · 2018Article
- Parents' Perspectives About Adolescent Boys' Involvement in Biomedical HIV Prevention Research.Archives of sexual behavior · 2018Article
- Inclusion of Adolescents in STI/HIV Biomedical Prevention Trials: Autonomy, Decision Making, and Parental Involvement.Clinical practice in pediatric psychology · 2018Article
- Adolescent-Parent Dyad Descriptions of the Decision to Start the HPV Vaccine Series.Journal of pediatric and adolescent gynecology · 2018Article
- Management of Adolescent-Parent Dyads' Discordance for Willingness to Participate in a Reproductive Health Clinical Trial.Journal of empirical research on human research ethics : JERHRE · 2018Article
- Adolescent and Parent Willingness to Participate in Microbicide Safety Studies.Journal of pediatric and adolescent gynecology · 2017Article
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
STUDY
objectiveTo understand parent and adolescent attitudes toward parental involvement during clinical trials and factors related to those attitudes.
designAs part of a study on willingness to participate in a hypothetical microbicide study, adolescents and their parents were interviewed separately.
settingAdolescent medicine clinics in New York City.
participantsThere were 301 dyads of adolescents (ages 14-17 years; 62% female; 72% Hispanic) and their parents.
interventionsNone.
main outcome measuresThe interview included questions on demographic characteristics, sexual history, and family environment (subscales of the Family Environment Scale) that were associated with attitudes about parental involvement.
resultsFactor analysis of the parental involvement scale yielded 2 factors: LEARN, reflecting gaining knowledge about study test results and behaviors (4 items) and PROCEDURE, reflecting enrollment and permissions (4 items). Adolescents endorsed significantly fewer items on the LEARN scale and the PROCEDURE scale indicating that adolescents believed in less parental involvement. There was no significant concordance between adolescents and their own parents on the LEARN scale and the PROCEDURE scale. In final multivariate models predicting attitudes, adolescents who were female and had sexual contact beyond kissing, and non-Hispanic parents had lower LEARN scores. Adolescents who were older, had previous research experience, and reported less moral or religious emphasis in their family had lower PROCEDURE scores; there were no significant predictors for parents in the multivariate analyses.
conclusionParents wanted greater involvement in the research process than adolescents. Recruitment and retention might be enhanced by managing these differing expectations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.