ArticleStatistical journal of the IAOS
Back to the basics: Identifying and addressing underlying challenges in achieving high quality and relevant health statistics for indigenous populations in Canada.
Article in Statistical journal of the IAOS. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 76 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
76 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Smoking Cessation Interventions in Indigenous North Americans: A Meta-Narrative Systematic Review.Nicotine & tobacco research : official journal of the Society for Research on Nicotine and Tobacco · 2023Pooled it
- Global incidence of suicide among Indigenous peoples: a systematic review.BMC medicine · 2018Pooled it
- Who is research serving? A systematic realist review of circumpolar environment-related Indigenous health literature.PloS one · 2018Pooled it
- Indigenous epidemiology in Canada: Epistemic struggle towards evidence, authority, and governance.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- Exploring factors associated with the physical, mental, and financial health of unpaid caregivers: An analysis of the Canadian National Caregiving Survey.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- Population-Level Outcomes for Screening Program Cancers in First Nations People in Ontario, Canada.JAMA network open · 2026Article
- Incorporating an equity perspective in systematic reviews of interventions: potential methodological approaches.Journal of epidemiology and community health · 2026Review
- Cultural and contextual relevance of the Indigenous data in the Canadian longitudinal study on aging.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- A scoping review of frameworks that guide race and ethnicity data collection in health settings: Learnings for the Canadian health setting.Canadian journal of public health = Revue canadienne de sante publique · 2026Article
- Observational
- The right to health: indigenous data sovereignty in Canada during and beyond the COVID-19 pandemic.Lancet regional health. Americas · 2026Review
- Ancestry or identity? The importance of Indigenous engagement in articulating First Nations, Inuit and Métis peoples in the 2006 Canadian Census Health and Environmental Cohort (CanCHEC).International journal of circumpolar health · 2025Article
- Reflecting on power: the inadequacies of small sample size technique through the lens of Indigenous health.American journal of epidemiology · 2025Article
- Voluntary self-disclosed Indigenous identity of patients in four Canadian health care settings: A multiple-site qualitative case study.Journal of health services research & policy · 2025Article
- The prevalence and burden of musculoskeletal disorders amongst Indigenous people in Pimicikamak, northern Manitoba, Canada: A community health survey.Preventive medicine reports · 2025Article
- Article
- Lung cancer in First Nations, Inuit, and Métis peoples in Canada - a scoping review.International journal of circumpolar health · 2024Article
- Design and implementation of the Our Health Counts (OHC) methodology for First Nations, Inuit, and Metis (FNIM) health assessment and response in urban and related homelands.Canadian journal of public health = Revue canadienne de sante publique · 2024Article
- Our Health Counts Toronto: Commercial tobacco use among Indigenous peoples in Toronto.Canadian journal of public health = Revue canadienne de sante publique · 2024Article
- Our Health Counts: Examining associations between colonialism and ever being incarcerated among First Nations, Inuit, and Métis people in London, Thunder Bay, and Toronto, Canada.Canadian journal of public health = Revue canadienne de sante publique · 2024Article
16 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
Canada is known internationally for excellence in both the quality and public policy relevance of its health and social statistics. There is a double standard however with respect to the relevance and quality of statistics for Indigenous populations in Canada. Indigenous specific health and social statistics gathering is informed by unique ethical, rights-based, policy and practice imperatives regarding the need for Indigenous participation and leadership in Indigenous data processes throughout the spectrum of indicator development, data collection, management, analysis and use. We demonstrate how current Indigenous data quality challenges including misclassification errors and non-response bias systematically contribute to a significant underestimate of inequities in health determinants, health status, and health care access between Indigenous and non-Indigenous people in Canada. The major quality challenge underlying these errors and biases is the lack of Indigenous specific identifiers that are consistent and relevant in major health and social data sources. The recent removal of an Indigenous identity question from the Canadian census has resulted in further deterioration of an already suboptimal system. A revision of core health data sources to include relevant, consistent, and inclusive Indigenous self-identification is urgently required. These changes need to be carried out in partnership with Indigenous peoples and their representative and governing organizations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.