SynthesisAge and ageing2016
Older care-home residents as collaborators or advisors in research: a systematic review.
Synthesis in Age and ageing, 2016. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 48 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
48 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Pooled it
- Identifying evidence of effectiveness in the co-creation of research: a systematic review and meta-analysis of the international healthcare literature.Journal of public health (Oxford, England) · 2021Pooled it
- A Pilot Randomised Clinical Trial of a Novel Approach to Reduce Sedentary Behaviour in Care Home Residents: Feasibility and Preliminary Effects of the GET READY Study.International journal of environmental research and public health · 2020Trial
- 'It Got Me Thinking About My Home Environment but Was Also Great Fun': Using Experiential Methods in Public Involvement Workshops on Indoor Air Pollution in Later Life.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Patient and public involvement in pragmatic trials with older adults: a multi-methods study of researchers' experiences.BMC geriatrics · 2026Article
- Methods of Engaging Interest-Holders in Healthcare Evidence Syntheses: A Scoping Review.Cochrane evidence synthesis and methods · 2026Review
- Evaluating co-design processes used in the development of healthcare interventions in residential aged care: a scoping review.Journal of public health (Oxford, England) · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Research collaboration with care home residents: a systematic review of public involvement approaches.Research involvement and engagement · 2025Review
- Aging Gut-Brain Interactions: Pro-Inflammatory Gut Bacteria Are Elevated in Fecal Samples from Individuals Living with Alzheimer's Dementia.Geriatrics (Basel, Switzerland) · 2025Article
- Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Participatory research approaches in long-term care facilities for older adults: a meta-ethnography.International journal of qualitative studies on health and well-being · 2024Review
- Empowering Ontario's long-term care residents to shape the place they call home: a codesign protocol.BMJ open · 2024Article
- Patient and public involvement in international research: Perspectives of a team of researchers from six countries on collaborating with people with lived experiences of dementia and end-of-life.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Activity provider-facilitated patient and public involvement with care home residents.Research involvement and engagement · 2024Article
- The psychological effects of research participation on people with dementia: findings from a German exploratory interview study.Frontiers in dementia · 2024Article
- [Participatory approaches in age(ing) research : Definitions, fields of application and challenges in different research stages].Zeitschrift fur Gerontologie und Geriatrie · 2023Review
- Effective approaches to public involvement in care home research: a systematic review and narrative synthesis.Research involvement and engagement · 2023Article
- Video Conferencing With Residents and Families for Care Planning During COVID-19: Experiences in Canadian Long-Term Care.The Gerontologist · 2023Article
- Using participatory research to co-produce an education and training e-resource to support care home staff to meet the sexuality, intimacy and relationship needs of care home residents with and without dementia.Frontiers in dementia · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundpatient and public involvement (PPI) in research can enhance its relevance. Older care-home residents are often not involved in research processes even when studies are care-home focused.
objectiveto conduct a systematic review to find out to what extent and how older care-home residents have been involved in research as collaborators or advisors.
methodsa systematic literature search of 12 databases, covering the period from 1990 to September 2014 was conducted. A lateral search was also carried out. Standardised inclusion criteria were used and checked independently by two researchers.
resultsnineteen reports and papers were identified relating to 11 different studies. Care-home residents had been involved in the research process in multiple ways. Two key themes were identified: (i) the differences in residents' involvement in small-scale and large-scale studies and (ii) the barriers to and facilitators of involvement.
conclusionssmall-scale studies involved residents as collaborators in participatory action research, whereas larger studies involved residents as consultants in advisory roles. There are multiple facilitators of and barriers to involving residents as PPI members. The reporting of PPI varies. While it is difficult to evaluate the impact of involving care-home residents on the research outcomes, impact has been demonstrated from more inclusive research processes with care-home residents. The review shows that older care-home residents can be successfully involved in the research process.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.